Capecitabine causing hand-foot syndrome

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Hello. I’m on cycle 2 of 8 capecitabine cycles (after chemo, lumpectomy, radiotherapy) and the soles of my feet have in the last 36 hours gone red, tiny bit swollen, tingly and I’m thinking plantar-palmar syndrome. I’ll speak to my help line tomorrow but I’d love to hear other people’s experience: what treatment they got, how long it lasts during/after chemo, did they have to reduce/ stop the dose (I’m terrified of having to stop in case any remaining cancer cells get a chance to reproduce) could they carry on doing exercise, running etc. ( can’t face the thought of having to stop the exercising I’m doing to help me recover/ avoid recurrence, like we are told to do. )

I’m a bit anxious so any experiences or advice welcome. Thanks

  • FormerMember
    FormerMember

    Hi NoTimeforCancer welcome to the forum.. I didn't have chemo but I do know it affects everyone differently so I think what you are doing by giving your chemo team a call in the am is the best thing to do as they will have all your medical history and can give you answers specific to you if that makes sense. Please do let us know how you get onnand what they say. Best wishes Gail xxx

  • Hi NoTimeforCancer

    I've just started Capecitabine less than a week ago after a previous treatment stopped working.  I am lucky to be in a Secondary Breast Cancer group which helps each other. So I’m aware that issues with the palms if my hands and soles of feet are a real possibility.  I have therefore been putting a good moisturiser on my hands and feet at nighttime and wearing socks in bed to allow it to really soak into my feet.  I am using Cetraben provided previously by the hospital for a skin issue.  I know that a 10% urea cream (Eucerin) can be very beneficial so will ask about this at my next review appointment in 2 weeks.

    Hope you got somewhere with your Helpline.  Let me know how you got on.

    K