Ribociclib side effects

Nello 5 hours ago

2 replies
275 subscribers
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Hi all. My first time of posting. Although I’ve found the forums helpful for advice etc. I’ve just never used it for myself. I was diagnosed with ER+ Grade 3 Stage 1 BC in November. Had a lumpectomy in Jan 25. Onco score of 39 changed my 5 days of radio into 4x EC chemo and 4x Taxel and about to start 15 days of radio. Just finished chemo last week - and oddly I feel more emotional/angry than I ever have. I’m a pretty ‘tough bird’ and am naturally positive and have handled the treatment so far pretty well - albeit 2 dress sizes bigger and completely bald! After radio my onco has discussed hormone medication but due to my onco score, he’d like me to have Ribociclib too. I’ve read the side effects of this, and the need for monthly blood tests etc and to be honest I just want to be left alone and not have additional drugs. I’m definitely on that ‘can everyone just f’off’ day which I know doesn’t help - but I’m suddenly overwhelmed with the next lot of treatment/choices to be made.
can anyone guide me with their experience of Tamoxifen (or similar) along with Ribociclab and how it impacts them physically and practically with monthly tests etc.

thank you all - and wish you all a great day xxx

Lily5 3 hours ago

Hi, Nello, Iam on Ribociclib along with letrozole, denosumab &zoladex injections. Personally I have coped quite well on these medications. I have found eating before taking Ribociclib helps to keep the nausea at bay. Always have ginger biscuits to hand or a lemon & ginger tea. I do have itchy skin on my hands & legs but I use either an aloe gel or shea body butter to help with that. The combination of medication I have does cause the aches & stiffness in the joints. Keeping mobile helps to ease this.

I have invasive lobular breast cancer & secondaries to the bones. Ribociclib has shown to have diminished the cancer in the breasts and shows some healing in the bones. It is keeping me stable. I have to have monthly bloods done. Ribociclib is a 21 day medication with 1 week break. I am on 600mg. If it doesn't agree with you your oncologist may drop it to 400mg.

I understand that you want some breathing space and you probably feel overwhelmed with all the information. You have been through so much. I wish you well with your next stage of the treatment plan xx

Nello 2 hours ago in reply to Lily5

Thanks Lily, I think today is a bad day and I sometimes find it difficult to sound off to my family and close friends. They don’t understand - and I hope they never have to. It’s also that finishing of one stage and now having to concentrate and absorb all the information that come with the next.

best wishes and wellness to you x

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Ribociclib side effects