letrozole and ribociclib pre surgery for large tumour

Hello

Firstly sorry to hear you have joined the club. It's not a club anyone wants to join, but here we are regardless. 

My story is not the same as yours but we do have some things the same. I am also er +, her2- and I have a high chance of future reoccurrence due to my cancer being very estrogen sensitive 8/8.

I have a long road ahead of me and like you I have felt very scared and tearful at times.

I have good days which I try my best to make the most of. I have bad days where I cry, get angry, yell and scream. From what I have seen other people write this is also something they are too experiencing. It's normal to have these thoughts and feelings. 

I try to just go with it as best I can, I try to stay positive, I listen to music for stress and Relaxation,  I try to get to yoga and I walk most days, even when I feel rubbish i force myself and I always feel a bit better. I try to listen to my body and rest when I need it.

Talk to people, friends, family, your breast cancer team, anyone you feel comfortable with.

You did not say why you are high risk of it coming back?

I now have a whole treatment plan laid out for me, my oncology consultant gave me some great options and I got to make some of my own choices for my future treatment. Don't be afraid to ask questions.

I hope this helps you in some way, hopefully others will also write on here with some more helpful information about their journey's 

Thank you this is helpful. The relaxation etc if good advice . i am walking every day and enjoying the weather. I am making to most of not working at the moment. 

I have written to the breast team this morning asking for some support. I feel that I need more information, as I'm unclear on a few things. 

I'm not sure exactly why the tumour is inoperable at the moment, I've just assumed because it is big, but I would like to understand this more.

Also I'm not sure why they have said it's a high risk of reoccurrence. This was said in my first oncology appointment and there was so much information to take in my head was spinning at the end, so I didn't question this; again I assumed it's because it's a big tumour, but I need to understand this some more. I have no idea about oestrogen sensitivity, this is the first time I've heard it.

I have been so positive since my diagnosis and have had in my head that I'm going to recover fully, but the last few days I have been struggling and doubting everything. I have a young family and want to be around to watch them grow. 

I cannot find anyone else on my treatment plan, with the neoadjuvant medication approach. But I think this is a new approach; in some countries it's still a clinical trial.  :-)