Hello.
I was diagnosed with grade 3 breast cancer in October 2024 (HER2 negative, PR negative, ER positive). Had mastectomy in November including sentinel lymph node biopsy. 1 out of 3 were cancerous. Not seen on MRI, CT or ultrasound. So had axillary clearance Jan which revealed no cancer in main lymph nodes.
Consultant and breast care nurse were positive and said, this is a very good cancer, not sure if you need chemo, margins were good, all cancer removed. Only tiny spot of cancer in one sentinel node it did its job in preventing it spreading to the main lymph nodes they said.
I never had a lump or any symptoms at all was just cancerous cells all over breast picked up whilst diagnosing a fibroadenoma so you can imagine my shock.
First appointment with Oncologist last week she said it has a high recurrence rate of 12% (oncotype was 26). I am 41 and pre-menopausal.
She has recommended 12 sessions of chemotherapy which is frightening. Taxol and carboplatin every week for 9 weeks followed by Epirubicin and cyclophosphamide once every 3 weeks 3 sessions.
Also, I am BRCA2 positive hence the carboplatin being recommended.
I suffer with extreme health anxiety and always read into things/get paranoid when I’m speaking with doctors that something sinister is going on. My biggest fear in life is getting cancer and having chemotherapy and being ill/losing my hair etc so you can imagine this has been the worst time of my life, feel like running away.
Has anyone had the same type of cancer and/or treatment regimen?
I think my appointment was a week after the oncotype came in and the oncologist gave me the chemo info to think about it and said she’d see me a week later to discuss my decision then at that appointment I signed the consent form and then chemo was booked for 2 weeks later.
Thank you I hope so, let’s keep in touch x
Oh that's really useful, I think I'll try get a wee break away with the kids for a couple of days before I start, so good to know it's not straight away.... I'll wait and see what results I get first... getting ahead of myself!
Yea absolutely, would be great to hear how you are getting on, will be thinking of you Monday
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