Advice please - senital lymph node

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Hi all I’m 46 and was diagnosed in October Grade 2 ER + HR2 negative had lumpectomy & senital lymph node biopsy in November and was gutted to hear that they found cancer in one of the 2 lymph nodes they removed. Was given choice to have lymph node clearance or extra radiotherapy on both areas to clear any cancer. We decided on no further surgery for risk of lymphoedema. I then met oncologist who said it was a grey area for me unsure of whether I need chemo or extra radiotherapy. She decided more radiotherapy and no chemo as they only know it’s in one node without further surgery. My anxiety is through the roof as I know another girl who’s in exactly my position who had lymph node clearance and they found cancer in 2 of her 19 nodes & she was advised to have chemo. I’ve also started tamoxifen and tiredness & headaches have started. Apologies for my essay I'm just overwhelmed with anxiety and know you are all so supportive. Thank you for your thoughts x 

  • Hi JRo

    So sorry you're so worried, sending you a massive hug - it's such a horrid time coming to terms with everything and knowing the best thing to do.  I was ER+ HER2-, had mastectomy and sentinel lymph node surprisingly came back showing macromets.  They only took one node out at time of mastectomy (not sure why) so they didn't know if the cancer had gone into any further nodes.  Therefore, more surgery with axillary clearance to determine how many more were positive.  I suspect with you if they've taken two and only the first was positive, they are pretty confident that it hasn't gone any further.  I lost 28 nodes (27 negative) in total, so it was an uncomfortable surgery.  The thing that got me chemo was my cancer was breaking off into little bits and leaving the main tumour.  What I'm saying is your case will be very individual and your team are treating you specifically for how your cancer is behaving. It's impossible not to compare ourselves with others, but we must trust our team, what else can we do.  But do ask questions if you're uneasy/unsure about anything.  I'm two years out from treatment, and I definitely wish I'd asked more questions during diagnosis, but I was terrified and I think had my head in the sand a bit.  As for the tamoxifen, it can give you all sorts of strange feelings, and of course stress too which a BC diagnosis provides in bucket loads!  Good luck, wish you all the best x