Hi, saw surgeon today and she plans on removing all axillary lymph nodes while carrying out mastectomy op. Four nodes are affected. I said I’d like some nodes left, to reduce risk of lymphodoema, but she insists on removing them all. She mentioned that NICE are currently weighing up the benefits of removing fewer nodes and having radiotherapy. I’ve read articles saying that this is now the norm in the USA and many other countries, and that there is very little difference in patient outcomes/results compared with people who have total removal. She said that because of my other health issues she needs to remove all of mine. She’s a professor and said she has performed hundreds of breast surgery operations, but I wish she would take my wishes into account, as the thought of having lymphodoema for the rest of my life fills me with dread! Would really appreciate your views - thanks!
Hi there, it's so difficult balancing our own views, risks and the medial advice. Have you thought about chatting to one of the Macmillan experts about the options? They might help you as a bit of an independent sounding board. You can call the chat line on 0800 808 0000 and whilst they won't make your decision, sometimes it's good to talk things through outside the family and medical team. Best wishes
