Hello lovelies, I was hoping someone might be able to throw me just a little ray of light as honestly, the last few days I have been at the lowest I think I have ever been. I found a lump late September and was diagnosed early October with HR2+ ductal breast cancer (grade 3). At the time I was complaining about a sore back (been back and forth to the GP/physio) for a couple of years but recently worse. Since then I have had MRI And CAT scans, they now think I also have two tumours on my spine and one in my ovaries.
My chemo which I was yet to start, was cancelled and the consultant sent me home with tamoxifen under duress, (i was concerned to wait yet another two weeks without treatment) after one of the grimmest of conversations when she was very negative and most of all I remember was chat of pallative care and hospices...
I am just struggling as how the flip I got here. I have three kids at primary school and until recently I am carer for my mum. Im not even convinced if Im making Christmas, I'm terrified to carry my 5 year old because I'm worried about the tumours on my spine.
I don't have a specialist nurse, well I did meet one when I saw a surgeon at first but she is only surgical and cant answer any questions about treatment and I wont be having any surgery. I'm not expecting to wake up and find out that this will all be a bad dream but I am finding it so hard as I feel totally (physically) fine. Even the lady at the Beatson gave me the third degree why I was there when I stopped by.
Can someone throw me a nugget of hope that I can see at least one of my babies to high school?
Hello Micromammy
I am so, so sorry to read your post.
I do think that giving the Macmillan support line would be a really good support for you. It does appear that you don't seem to be getting solid answers from your team, so a chat with a Macmillan support worker would be a great place to start for them to give you some guidance.
Telephone number: 0808 808 00 00 (8am - 8pm)
Kindest wishes to you,
Lesley
Hi, so dreadfully sorry to read your post. I agree with Lesleyhelen, do call the lovely folks at Macmillan and have a chat. If you don't have another appointment date yet, it would be worth chasing this up too. I think it's important to remember that cancer treatment has progressed significantly in recent years and I am sure once you have a clearer treatment plan you'll have a better idea of what is going on, but I can only imagine the uncertainty, worry and fear. Best wishes
