Hello
Since being diagnosed at the beginning of August wihh the stage 2 breast cancer I have found some comfort reading some of these posts. I have had a mastectomy and lymph node clearance. I have also since found out I have the BRCA 2 variant as well. I had an appointment on Friday where my surgeon told me I will have chemotherapy, radiotherapy, immunotherapy and then be on tamoxifen for 10 years.
I am feeling quite overwhelmed and waiting for a consultant oncologist to ring me to tell me more information about my next steps. But it’s constantly at the back of my mind about the cancer coming back which I suppose will never go.
Does anyone have a similar experience and can offer some words of advice? I feel up until now I’ve felt quite positive and proactive and now it’s hitting me.
Hi there, I think we all have ups and downs in terms of how we're feeling with a cancer diagnosis, I certainly did when I was first diagnosed, and to be honest, I still have wobbles even now, 3 and a half years on.
The lovely folks at Macmillan are always at the end of the phone on 0800 808 0000 if you ever want to chat anything through, and this forum also provides great support in itself.
For me personally, I try to distract myself, spend time outdoors and keep busy and usually the worry passes. It's about learning to live with it and accepting it's a new normal for many people, but I take a lot of courage and hope from the many success stories that I hear about.
Best wishes with this next phase of your treatment.
Hello, my journey was/is quite similar to yours. I too had a mastectomy and lymph node clearance last November and later found out I have the BRCA 1 variant.
I had 6 months of chemo from January to June this year. During this entire period I used a nail strengthener varnish, Ecrinal, on both finger ad toe nails. They remained strong and healthy throughout. When my hair started to fall out in clumps, one day before my second chemo session, I had my husband shave it but leaving a 4mm growth on head. This ensured my scalp wasn't itchy when my hair started growing back. These tips were passed on to me by a friend and they really work so hope they'll help you too.
Make sure you mosturise your chest with the cream the hospital will recommend you during radiotherapy. I finished 15 sessions two months ago and am still using the cream and I only had a tiny burn on my collarbone. Remember to apply the cream there too from day one!
I'm on Exegen for 5 years and Abemaciclib for two years.
I had meetings with the hospital psychologist before and after surgery and then all during the six months of chemo. This was brilliant for me as it allowed me to express anger, sadness and all ranges of emotions in a safe space. My husband, friends and family were brilliant but I didn't want to depress them so saved my most anguished moments and fears for the psychologist. It was great just getting everything off my chest.
Take everything day by day. Thinking about the road ahead is overwhelming so just focus on each day at a time. Go for walks, continue a sport that you love, spend time with people who make you laugh.
All the best!
Thank you both for your replies. Some days I am better at distracting myself and keeping those intrusive thoughts away more than others.
Toscana, thank you for positing your similar experience and for those tips. I would never have known about keeping 4mm of hair! I have a wig ready to be cut into style when the time comes. I hope that your recovery is going well!
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