Mirena coil and tamoxifen

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Hi all, seeking wisdom about Tamoxifen, oncology appointments and Mirena coil please

Firstly,  I finished radiotherapy on Friday, supposed to start on tamoxifen soon, but no discussion has been had about this, I was expecting to talk it over with oncologist before taking a drug for 5 years, talk about dangers, side effects etc, have any of you had such a meeting?

Secondly have been told no need to take my Mirena coil out but no discussion about this, seems like a lot of people are told to immediately. Read evidence and seems inconclusive, hard to know what is right, has anyone else kept theirs in?

For reference I am 51, had 8mm tumour in breast removed in July, just had 5 days radiotherapy,  PR8 and ER8 

Thanks in advance Relaxed️ 

  • Hi Janszham

    Sorry to hear that you were diagnosed with breast cancer.  I had a meeting with my oncologist before starting the anti-hormone pill that I'm on.  So far I haven't had any problems with it.

    Wishing you the best of luck with tamoxifen.

    Best wishes

    Daisy53

    Community Champion Badge

  • I took mine out but they were quite relaxed about the timing. It’s obviously progesterone but it’s kind of a closed system in your uterus but I think progesterone might metabolise into estrogen - so ultimately I think you’ll end up having to have it out. But I wouldn’t stress too much they haven’t done it yet they probably don’t want to over load you

    hhaving said all that I’m post menopausal and on letrozole - so slightly different situation 

    Ps having it out was fine and no probs afterwards except a bit of random spotting  

    best of luck 

  • Hi there! Congratulations on finishing radiotherapy! It’s understandable that you want to discuss Tamoxifen before starting it, especially with a long treatment ahead. Many people do meet with their oncologist before beginning the medication to go over potential side effects, benefits, and any concerns. If you haven't had that discussion yet, I’d recommend reaching out to your oncology team to schedule an appointment. It’s important to feel comfortable and informed before starting any new treatment.

    Regarding the Mirena coil, you’re right—there’s some debate on this. While some are advised to remove it, others aren’t, especially if it was inserted for hormonal reasons. Since the coil contains progestin, and Tamoxifen can affect hormone levels, I’d suggest discussing this further with your oncologist or a gynecologist to ensure that keeping it in is the best option for your situation.

    But remember that it is extremely important to use only high-quality Tamoxifen from reliable pharmacies, for the best results and to minimize side effects.

    Better to double-check and feel secure in your choice!

  • Yes I think you need to talk to your team for a personalised response. I was told to remove mine straight away on diagnosis and to stop all hrt tablets too l. All the best x

    • Thanks everyone,  have now got an oncologist appointment for Monday so will discuss this, thanks for all the advice