Hi,
My mum will be starting treatment for stage 1 HER2 positive breast cancer. She will be getting 6 cycles (every 3 weeks) of carboplatin/docitaxel and Herceptin.
I am looking to see if anyone has been on this protocol - what their experience of it was and if you would have any tips on how to deal with any side effects you might have experienced.
Thank you
ooh another thing - my tumour was large - 60mm - the onolcogist said the herceptin wouid shrink it (I’m having chemo then surgery) - I didn’t quite believe him - anyway it’s gone. As in I can’t feel it anymore. Thats after 2 rounds of herceptin. There is no lump anymore - it feels like normal breast tissue. I’m sure there are cells visible on a scan but physically I cannot feel it AT ALL and it was really prominent just before I started chemo. The oncologist had a good old fondle the other day and said this was “remarkable”. I’m still in shock!
After 2 rounds of chemo my tumour was less than half the size it was at the start. I've now had 4 rounds and Monday's ultrasound showed nothing, it was followed by a backup mammogram which was also completely clear. I'm in shock too. I've still got to do the last two rounds then surgery radiotherapy and phesgo for another 9 months. Having just got used to saying ' I've got cancer' I might not need to say it again!
Hi - I wouldn’t know - do speak with your oncologist - mine is in my lymph nodes too (one or two I think). The traditional chemo kills everything else - personally I’d take whatever I can and whatevr is recommended but it’s your decision - I’d rather do it all now than have to come back later…..do speak with a medical professional and discuss your worries. Sending good thoughts for whatever you decide.
That’s great! Congratulations! Does that mean that they downgrade the stage/grading? I’ve got to have 3 more rounds, then surgery, radiotherapy & more Phesgo - (herceptin). Sounds like you’re a little bit ahead of me. It’s nice to hear from someone who has had chemo first - everyone asks why they are doing it chemo then surgery - because I think the other way around is more common. I understand it’s because HER2 is easily treated with Phesgo/herceptin so that often (although not always) goes first otherwise you have to wait for surgery recovery which can be a while if there are complications - if like me the tumour is over 50mm then it can be shrunk so that a lumpectomy is possible.
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