Hi, I am sorry I don't have the experience to help you myself, but I just noticed your post hasn't had any responses yet, as the site is quite busy. My answer will bump you back to the top and I hope someone with the right experience will be along soon.
I don't often look at the forum as life bumbles along. original diagnosed 2012 double mastectomy chemo an radiotherapy. Well for long time then 2019 felt unwell secondary found in ovary. Removed an started palbociclib with letrozole. I'm still here an still on it. All beit the losest dose 75mg cos side effects. I have noticed over the last year my blood results always iffy an often have to have an extra week off meds. At the moment I'm having a three week break as platelets don't want to improve. But positive I will bounce back. So I've been on palbo for 5 years
Hi Tea for Two, I originally had stage 3 lobular breast cancer in 2012. I had lumpectomy, chemo and radiotherapy and then the tamoxifen/letrazole for five years. Last year I had back and hip pain. I was diagnosed in September 24 with secondary breast cancer with mets in pelvis, spine, ribs and skull. Have another scan on Thursday. I am on exemastane, ribociclib and denosumab. I am just on the start of this journey that you have been on for five years. How are you getting on and how is your quality of life? I cant believe you this horrible disease changes everything. Take care.
I changed my life to cope with side effects. I was senco in school but was always getting poorly from children illnesses. So now I work for my hubby so work when I'm fit an rest when I'm not. I get tired lots an aches an pains but I carry on regardless. I live a quieter life than expected but I get to see my children an grandchildren grow an flourish which brings me joy.
Don't get me wrong it ain't easy but you have to tell yourself to get out of bed... get on with it, there isn't a lot of support despite the adverts an claims it' seems only end of life is supported an i get it resources are costly. But be determined do what you want but when u have a bad day give yourself the time to restart recover.
It's still a horrid illness an ya can't help worry over future but try to do what you can when you can try to live...by they way I shout an scream an am angry it's not fair.
