Treatment break from Kadcyla infusions

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I’ve had 5 of 14 Kadcyla infusions, following chemo, surgery and radiotherapy, and taking letrazole. I just feel battered now, and am considering taking a breather from the Kadcyla, and having the next infusion in 6 weeks instead of the normal 3 weeks. 
I have tried to get a call on with an oncologist, but that will be in 3 weeks time, when I would due the next infusion.

In the interim, it would be good to know if anyone else had a break from treatment, and how they got on. It worries me that I’m putting myself at risk, by extending the next dose by 6 weeks, but the side effects from neuropathy aren’t great either .

  • Hi Las61

    Welcome to the forum and I am sorry to hear that you struggling from the treatment you are receiving.  While I don't have any experience with taking a break from treatment I noticed that you haven't had any answers yet so I thought I'd reply to you anyway to welcome you to the community.  This response will move to the top of the discussion.  Hopefully someone will come along soon with some experience for you.

    Best of luck with the rest of your treatment whatever you decide to do.

    Best wishes.

    Daisy53

    Community Champion Badge

  • Hi Las60, I have just completed my 14th Kadcyla after having a break after my 5th. The neuropathy I experienced in my feet was horrible. I had a 6 week break and it allowed me to feel better. I then continued the rest of them at a reduced dose and I had no pain thereafter. I was upset at the time, fearing a break would stop treatment working as well, but I was miserable and the pain I was experiencing was taking over my days. My oncologist was all for the break and explained that a 6 week break was nothing in the big scheme of things. I hope this helps!

  • That is so helpful, I have at last managed to speak to an oncologist, she suggested that I reduce the dose to a minimum, and see how that goes, if that doesn’t help, then try 4 weekly intervals. I’m happy to see how that works, as like you the neuropathy is getting me down. 
    so it’s good to know that a 6 week break is ok in case I need to go down that road. 
    best wishes to you