Hi
I’ve today been diagnosed with ILC
all over the place mentally
one minute strong then catastrophising and terrifying myself my googling things
as you can maybe see from the time can’t sleep!
heres my story so far and I’d love to share notes and especially love any reassurance
noticed a lump about a month ago
a mammogram last week showed nothing , neither did my routine one in january
a ultrasound last week did show a suspect lump (the one i felt)
axial looked normal on ultrasound
biopsy done then
results today show ILC, grade 2, early stage ( he wouldn’t give a number)
its oestrogen positive don’t know yet about herceptin (I was told ilc usually negative)
plan is mri tomorrow to check size and location and to check the other breast and lymph’s before probably lumpectomy in july
then radio then meds for 5 years
i think i can handle all that and actually wondering if I’d be better with a mastectomy as this kind of BC notoriously hard to find …..any thoughts?
also I’m completely freaking out that it’s spread, sounds silly but now I can feel like my underarms are swollen! And I had awful heart burn earlier this year which I’ve just found out (thanks google )is a possible symptom of spread in ilc. I’ve been fit and well my whole life
oh and now I’m also stressing they will find it in other breast on mri
basically just having a middle of the night complete whitey
lonpve to compare notes or take advice
thankyou
Amazing amazing. You obviously smashed it. Never met you and now you’re a role model!! 
Thanks so much
That's good news. Hopefully things won't change after the operation.
Best of luck with it.
Daisy53
Sorry to hear that you have been called in for another ultrasound. No need to apologise for being negative, we all feel like that sometimes especially when plans change. However take heart from the fact that they are making sure that they don't miss anything untoward.
Sending you a hug. xxx
