If only tongue amputation was an option ….

JenPen 16 days ago

3 replies
254 subscribers
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I’ve just had no 2 of 4 EC and the metallic/ sour taste is driving me insane! I’m finding it really hard to deal with. Finding it really intrusive when I’m trying to rest or sleep! I know there’s not much that can help but I’m just wondering if this is something that continues when I start on pacletaxil - living in hope x

latchbrook 16 days ago

Hi JenPen

I didn't have a metallic/sour taste but did lose my sense of taste when I had EC but no problem while having paclitaxel.

I found that if I ate really spicy food it tasted as it should and pineapple always tasted of pineapple, so I ate that instead of other fruit and also drank pineapple juice.

"Never regret a day in your life, good days give you happiness, bad days give you experience"

Irishgirl16 16 days ago

Hi there, it's really quite debilitating, isn't it? Taste was one of the really annoying side effects. I was able to tolerate cucumber and pineapple and about 10:days after each chemo it got better. Best wishes

Jooliepie 15 days ago

My BCN suggested nipping a bit of a fizzy Vit C tablet and sucking that as it apparently’resets’ taste buds. It may be a complete placebo effect but I convinced myself it helped food taste more palatable.

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