I was last seen by my consultant on 3rd January when he said he wanted input from the sarcoma team who are based at a different hospital. I understand he has emailed them twice, once before Christmas and once on 3rd January. Since then no news and the mailbox for him is full so I can’t leave a message. I have no other contact details so don’t know who to chase. It’s been over two weeks now so obviously I am getting more anxious by the day. When I saw the consultant before Christmas he said I would probably be having a mastectomy in January followed by radiotherapy. Following a CT scan he said he wanted input from the sarcoma team as I have a Phyllodes tumour. I now feel my case has fallen between two stools and I can’t contact anyone to find out what’s happening. Deeply frustrating and I feel I can’t make plans.
