Can DCIS make you tired?

Did you have the extreme fatigue before you diagnosis or only since the diagnosis? Could it be the extra worry that is making you more tired?  I was also diagnosed with high grade DCIS back in April. 
I can’t say I noticed a difference in fatigue levels before and after diagnosis. I’ve always liked my sleep but didn’t notice any difference in the length of time I slept. I was told that my DCIS had probably started 5 years previously. 

I always suffered fatigue since I was diagnosed with my first autoimmune condition at 16 (I’m now 43), but it’s more lack of energy and tiredness. This extra fatigue has me feeling like I could fall asleep during the day which never happens. Normally I live with about half the energy of someone without autoimmune conditions, but at the moment I feel like I have about 20% the energy….Maybe it’s just everything including extra worry. I suppose I only have another month before it’s out and tested. I wish I could have a full body scan just to ease my mind x

Sorry to hear that. It’s worth running it past your BCN . Let them know it’s causing extra fatigue and worry for you.Assume they are doing a sentinel lymph node biopsy when they do the surgery - this will help determine if any spread. Try not to worry too much. DCIS means it’s contained within the milk ducts. 

Thank you, yes I’ll mention it to her. It’s always hard for me to determine if anything is wrong or just autoimmune. They will be doing the biopsy of the node at the time of the surgery also, so at least not long to wait. Maybe it’s just all the extra stress. Thank you :-) 

Just a thought - it might be worth asking to be tested for pernicious anemia- it cause fatigue and often undiagnosed. Easily treated with B12.

xx

Hi Miss Potters,  sorry you have another issue on your plate but one thing about DCIS is it is not invasive as has not escaped the milk duct.  I do understand about it being worrisome none the less.  I had it in my right breast and then stage 1 invasive in the left found at the time of initial testing but it took awhile for everything to be done. I did not have fatigue with the diagnosis but did lose about 10 pounds going through it all and I was eating well but my body was on overdrive along with my mind.  
You are going through a tough time now and stress can certainly make you feel extra exhausted.  Each and everyone of us is different and with autoimmune issues it can certainly makes it harder.

I am praying for you that it is DCIS and nothing invasive and that you recover well from mastectomy.
Barbara

Hi Barbara, 

Thank you so much for kind words & well wishes. 
Sorry to hear all you went through, I hope you are recovered now or at least well on your way to being. 
The stress certainly isn’t great, it doesn’t help that I seeing other specialist for concurrent issues….so can’t wait till this is all over and I have less to worry about (fingers crossed).

Hopefully my tests will come back ok and I can at least be able to rest about that issue.

Thank you, Sarah xx

Hi Miss Potters,  I’m really doing great and feeling strong again.  Tolerated things well other than the stress which really got to me.  Now that I look back I wish that I had been not so stressed as it was not helpful and actually delayed my treatment as couldn’t make up my mind.  Surgeon was wonderful as he was patient and helped me to finally get it worked out where I was comfortable with the decision.  It was the radiation that I didn’t want especially to both breasts but other alternatives were mastectomy with reconstruction or going flat.  Since my cancers were early I went with lumpectomies and radiation and came out ok.  Stronger mentally too.  Now I am on hormone blockers and deal with some side effects but it is alright as I want to give myself the best chances of living a long life free of BC.  I just had my 75th birthday yesterday and celebrated today with a 20 mile bike ride.  
I am hopeful once this is all done that you can feel better and stronger and just work on the other health issues.  Fingers crossed for good results.  
Barbara

Well it sounds like you are definitely doing everything right with that long bike ride keeping you healthy…Happy belated birthday! Yes it’s easy to look back with hindsight but it sounds like you made the best of decisions at the time and for your future to celebrate that 95th birthday (though maybe with a smaller bike ride!).

Thank you, currently sat waiting for a pre-assessment for lymph removal ..so on the route to being free of this also  hopefully xx

Take care and good vibes being sent to you.  Also have been on a plant based diet since 2016 and I think it’s a plus too.  Can help autoimmune issues too.  
Was cold here in Florida today.  54 degrees so was dressed warmer for my ride today.  
Going to make dinner as we are getting hungry.

Barbara