Newly diagnosed

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Hi,

Today I've been told I have stage 2 ductal invasive breast cancer. Luckily my lymph nodes were clear on scan, it's ER +ve and HER2 -ve. I knew it was coming, but I am still finding the tears coming. I need to tell my son (26) who lives with us, but I can't say the words and I'm sure he'll catch me crying soon. Any advice on how to navigate the emotional turmoil and how do I start that conversation?

Thank You

  • Hi sorry to read your diagnosis.   These early days and weeks really are the worst part.  Telling loved ones being particularly difficult.  My eldest son is 24.  I found just sitting down and coming out with it and then all crying and supporting each other was the way for us.  

    After a day my son who us emotional at the best of times was really OK with it.  I think younger people are more used to people surviving cancer. He had lots questions some I just had to say I don't know the answer to at the moment.  

    Good luck and remember to take time for yourself.  These early days can be exhausting as you support others with your diagnosis.

    I too was ER +ve and HER2 -ve and four weeks after surgery I am feeling better than I have in last couple of years.  I am waiting for treatment to start so may feel differently soon but iit's ot been as bad as i thought it would be 

    xx

  • Hello LuckyD,  Sorry about your diagnosis as this is such a difficult time.  For me personally I just blurted it out to my husband after I talked to radiologist and then called our son and told him too.  He was 44 so older and he is is medical field.  I I do remember him saying will you be ok?  I said yes and I could hear relief in his voice.  My son is also very sensitive but I t think since I felt well and cancer was caught early the conversation was easier.  There is no best way to tell bad news but I think being honest is the most important.  They can sense when something is wrong anyway.  
    Take care and we are all here for you.

    Barbara

    Barbara 

  • Sorry to hear your diagnosis.  I was diagnosed with the same results.  It was not easy to deal with at the onset, but I was upfront with everyone from the day of biopsy.  It was still a shock to get diagnosed but I felt I could deal with it better telling everyone from the start.  My sons took it ok, 36 and 23. Both autistic, but understood and took it well.  They do not show a lot of emotion, but I knew they cared.  Look after and make time for yourself.  Read others stories on here, this helped a lot to make you feel supported and you get a lot of information too.  I wish you all the best for your treatment x

  • Even just owning up to yourself is the first hurdle. It was like grieving, I felt like it was happening to someone else even after the surgery. My son doesn't really know, he has learning difficulties. I felt quite pragmatic, just do what they asked untill I could process it. Lumpectomy and total node removal. No chemo , just radiotherapy and Tamoxifen. So hard at the beginning, my op was beg of Dec last year.  Trying to normalise where possible. Energy still half volume at times. Xxxx

  • You are very right there Sabrina22.  It is like grieving. You feel a bit out of control to be honest, and from someone who has always had to be in control, especially with our sons, I found that very hard.  Now, I try to just accept whatever comes along and get on with it.  The waiting i found in between things, is the most difficult.  But I try to take one day at a time and get through.  Not sure if I have to have radiotherapy now and then Letrozole for 5 years.  Wish you all the best x

  • I totally get how you feel about telling your son. I waited a little while to tell my two (25 & 28). I told them I had a lump and that it needed to be removed but that I’d been told it was small and caught early.  I know it sounds silly, but I gave it a name. I called it Lionel the Lump. Always refer to it this way. It meant I didn’t need to say the word cancer. They asked lots of questions and totally understood what it was but giving it a name seemed to reduce the fear a bit. Lionel was removed on 2nd September and I had good news yesterday that there were clear margins and lymph was clear. Waiting for Oncotype results now before further treatment. I wish you lots of luck with yours.  And I am sure although your son will be upset initially, he will want to be support to you. My two have been amazing.  Very best wishes. X

  • Hi,

    Thank you for your reply.

    It's not silly at all to give it a name - I did the same thing with my blood clot and it did help refocus my mind. I hadn't thought about naming my lump, but I like it.

    I'm glad you had good news yesterday and wish you well with further treatment. x

  • Thank you. I hope your treatment goes well.

  • I had grade 1 invasive ductal carcinoma had a mastectomy in may has I had dcis .The cancer was tiny but I had a lot of dcis nodes were clear so no radiotherapy and on tablets for 7 years and yearly mammogram.I know it's a worrying time .But I here is light at the end of the tunnel My fingers are crossed for you sending big hugs xxx