Evening!
long story short, mum had breast cancer in 2014 followed by a double mastectomy. I fought to have the cancer gene test done and they refused, despite an extensive history of breast and many other cancers in my mums family.
fast forward to 2023. Mums cancer has returned. 9 years later and spread from cervix to a rare type in her bowel/stomach and fluid - she’s terminal. Specialist said she SHOULD HAVE HAD THE GENE TEST IN 2014. So they did the gene test on mum and she has the deadly breast cancer gene, which means her daughters (me!) are at risk.
I went to the doctor the other day after feeling so exhausted with pain in my armpit, arm and collarbone. She asked to examine my breasts. She found a 5p sized hard lump in my breast. I’ve been referred as urgent. I’ve an appointment in 5 days. I’m scared.
there’s no obvious signs - I can’t believe I missed the huge lump. my breast is tender but the lump is not sore. My arm/shoulder/collarbone cause me more pain than the breast bump it’s always there like a throbbing dull ache (the breast not the lump)
im 35.
Hi, so sorry to read your and your mums story. Sending you both lots of hugs.
Try not to beat yourself up of not finding the lump. It's so easy to put aches and pains down to other things. It's good you are treated as urgent, the waiting for appointments, scans and results can be the worst part.
Hope all goes well at your appointments, let us know how you get on.
Take care
xx
Hi FeelingHopeful , sorry you’ve had to find yourself here, and for what you’re going through atm. I wanted to pop in to give you a big virtual hug, you’re going through such a truly horrible time with your mum’s situation and now facing investigations yourself. Too much all at once but somehow you’ll get through it all and there will always be support here. It’s beyond maddening that they didn’t do the gene tests earlier; I assume you will now be tested as a matter of urgency?
I wanted to share with you that my mum also had breast cancer, which spread before she even got to 5 years post op. But my own breast cancer experience has been very different. I have had many breast clinic referrals over the years and all proved benign until 5 years ago when I was 59. The false alarms: ‘nodular breasts’ age 20, no action needed; duct ectasia age 35 (tearing pain after breastfeeding), no action needed but just stopped feeding on that side. Fibroadenoma (benign hard lump) at 48. Cysts a few years later. Finally breast cancer at 59. Treated, and I’m nearly 5 years post op, so far so good.
So a long way of saying, don’t immediately assume you must have cancer. Most lumps and bumps aren’t cancer but it’s natural to fear the worst. And if it does turn out to be cancer, treatments are developing and improving all the time.
Sorry you’re in that tortuous limbo stage, waiting for your appointment. Somehow the time will pass and you’ll have some answers next week. Keep posting (there’s also a Friends and Family group here) and let us know how it all goes. Will be thinking of you, love and hugs, HFxx
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