Hi all, I'm fairly new on here, have been reading lots of threads but not really confident to join in as such... so here goes! Diagnosed last October with invasive lobular bc. Have been on Letrozole and managed side effects as well as expected. Had WLE and some sentinel lymph nodes removed on 3rd July and have been recovering very well with no major complaints at all. Went today for results and I had some great news, some good news and some not so good news. I expect that's how it rolls! Generally I was told that I would have surgery then radio, and 'maybe' some chemo, but it was thought unlikely. Anyway, histology gave mixed cancers - lobular and ductal, stage 2, Dr Ahmed has worked his magic and git all 49 mm tumour out with clear margin. So that's the fab news. Unfortunately cancer cells have been found in the lymph nodes. So next up for me is Chemo, then radio and then more surgery to remove 1st 2 levels of lymph nodes. So that's the not so good news. I felt quite shocked and haven't figured out in my own head yet, why I feel so shocked because its not like I didn't know I might have to have chemo or it doesn't change anything else but somehow, today's news feels worse than receiving the diagnosis back in October when I just said ok to it all and carried on with life regardless. Anyone else relate or have words of wisdom? Thank you for reading and I wish you all the very best of everything xx
Hi, I’m new too, so well done for posting and it’s prompted me to reply. So sorry your news wasn’t better. I had lung cancer and surgery nearly 8 weeks ago now. I had my post surgery follow up yesterday and I’m very thankful to say I’m clear for now. I feel guilty as I’m not jumping for joy and can’t understand why. I think I’m still coming to terms with the cancer diagnosis as I had a little hope it was going to be something less serious. I know words can’t help, but you are not alone in how you feel and I hope this forum gives you some support and strength.
Hi Hartley, sorry to hear of your diagnosis. When I was first diagnosed I was told chemo was unlikely. However after all the results were in my plan changed and chemo was on the cards. Maybe because we are told it might be unlikely perhaps that’s why it’s more of a shock as we are not expecting it. If it were the other way and we were told likely to have chemo and then get told no don’t need it, it would be a relief. There is so much to take in at times and I think it overwhelms us and we just need time to process it.
You mentioned you were diagnosed in October and put on letrozole and then a WLE in July. So for 9 months you have had no other treatment? I’m surprised you had no chemo, surgery etc sooner to help prevent possible spread. Perhaps I have missed something?
Wishing you all the best.
Hugs from cuffcake x x x x x
Hi Harltley
Welcome to the forum and sorry to hear that you have been diagnosed with cancer. I had a lumpectomy in May on my right breast and they found some cancer in the lymph node that my surgeon took which I wasn't expecting so I was shocked when I got that piece of news To cap it all off I had to have a CT Scan and they discovered after calling me back for an ultrasound and a biopsy that the cancer I was diagnosed with nearly three years ago was back in my left breast so I have to have another lumpectomy which I will have the same day as my right sided node removal.
Just take things a day at a time and keep doing what you love to do.
Wishing you the best of luck with the rest of your treatment.
Best wishes
Daisy53
Aww thank you for your kind words. Lung cancer must be very tough to get your head around and recover from! You are clearly a wonderfully strong person, I don't think we give ourselves enough credit as we are used to just getting on with it I guess! I feel guilty that my cancer has had such an impact on my friends and family. Guilt is a horrid thing to cope with, please be kind and generous to yourself, and don't apologise for feeling how you feel. You are wholly entitled to be and feel how you do, so just try and go with it I guess! Lots of luck to you with your continued recovery, wishing you all the best x
Yes, that's right, I have had only the Letrozole to shrink the tumour since diagnosed last October. It was 50mm.
They said it had shrunk down to 30 on mri but today was told it was 49 mm tjey removed . So while it appeared to shrink, it hadn't really lol , sneaky thing wasn't it! Thank you for your reply xx
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