Had ultrasound, biopsy and mri now called back to breast clinic!!

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I found a lump back in May and was referred to the breast clinic where I had a mammogram, ultrasound and biopsy. Was then taken to private room and told it’s breast cancer! Not sure how they knew when I hadn’t had the biopsy results yet?  After 10 days I was called into breast clinic to be told that the biopsy doesn’t match what they saw on ultrasound ( cancer). Booked for mri a week later then told to wait a week and then call breast clinic to see if I need another biopsy. Called Yh clinic today to be told I’ve got an appointment for next week 11/7/2023. I asked if it’s for a biopsy and was told by the receptionist that she didn’t know. Phoned breast nurse but haven’t heard anything yet. 
 Has anyone else had a similar experience? I’ve been off work for 3 weeks as my anxiety is through the roof and I’m not coping well. The waiting is the absolute worst. Not knowing and having constant test  is killing me!! 
Sorry for the long post I just don’t know what else to do! 

  • Hi Gemstar 

    Sorry to hear of your diagnosis.

    I was diagnosed in May and had op date put back as found several tumours so booked in for mastectomy in couple of weeks. In the meantime I’m on Letrozole.

     It’s a tough time waiting for results and not knowing what the outcome might be, however this site is amazing and supportive and I’m sure others can advise and empathise.

     I’m sending you my best wishes and a hug.

    I try to keep myself busy reading, walking, crafting, telly, anything to keep my mind occupied. 

  • Thanks for replying. I don’t know how people do the waiting part it’s horrible. Xx

  • Hi, sorry to hear you're in this horrible stage of waiting and not knowing, it's grim.  I appreciate you've stopped work due to the anxiety and I have no idea what you do for work,  but I have to say, being at work really helped me in the early stages of waiting for results as it kept me busy and distracted.  My colleagues knew what I was going through, so we’re super supportive if I felt I had to drop off a call or disappear if I got upset, but I know, at least for me, working helped me to cope.  Wishing you the best until you know for sure and have a plan. 

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  • The waiting is the worse and everyone’s journey is different. My first mammogram was July 2019 and then had ultra sound biopsy mri etc and I did not get a diagnosis until September when I was diagnosed with lobular breast cancer. On my letter it said incidental finding they first said I had LCIS but they doubled checked. They have to double check everything. I am ok now just waiting for my 4th year mammogram.  

  • thinking of you, hope the appointment has helped answer what is going on, sending hugs