My mum has been diagnosed with metastatic breast cancer (triple negative). The breast cancer spread to her lungs, causing reoccurring fluid build up in her left lung. She has a collapse lung, her lung now is as 70%, she has a rocket tube inserted so the district nurses come to drain fluid every week now. The oncologist gave her a prognosis of 12-18 months with chemotherapy, and if she can’t tolerate chemotherapy then around 6 months. I am just heartbroken. I was 21 when my mum was first diagnosed with triple negative breast cancer, grade one, early stages (two years ago). We were hopeful, as doctors said it was caught early and was cureable, she had 8 rounds of chemo, lumpectomy and radiotherapy. However, around 9 months ago mum started to have extreme back pain and something didn’t feel right, it wasn’t until may that she was re diagnosed. She is suffering so much, and I wish I could do something, I wish my mum didn’t have to die. I’m 23 now I feel like I have barely had any time with her. My mum was such a strong and independent woman, and now to watch her become so weak and in pain, is something I never saw coming. How do I come to terms with the fact my mum won’t be here in a years time? I got married in March, and I feel the situation has also affected my marriage, simply because my husband just doesn’t understand what I’m going through, which is not his fault but I just can’t help but feel angry and upset towards him all the time because I feel like he doesn’t understand, but how would he? He’s not the one going through it. I have been my mum carer for 2 years, taking care of her is all I do because I want to. I take care of all her medical stuff, doctor’s appointments, her medications etc. have a meeting with palliative care today. I continue to put on a brave face because if I lose it, my mum would feel even worse than she does now. I have nobody to turn to, because nobody understands.
Hi Sara9, so sorry to hear about your Mum. The support network at Macmillan is great and we too are here for you as well to help where we can. If you reach out to Macmillan I’m sure they will be able to put you in contact with someone to help and talk things through with you. My Mum didn’t have cancer she had Alzheimer’s which robbed her of everything. I found it difficult at times as I was her main carer. My husband helped an awful lot at one point as he had no job, I was very lucky that he understood and support not only me but also her. I’m sorry your husband doesn’t really understand how you feel. Maybe speaking with someone together will help.
I’m sorry there is not much more I can do but I’m sure there will be others who can offer you some comfort because they have been through something similar with their loved ones.
Sending lots of love and hugs cuffcake x x x x x
I’m so sorry you are going through this heartache. I’m sorry too that your mum is so poorly. I don’t have any advice I’m afraid other than have you ttried McMillan support. Please try to take a break when you can, it’s important that whilst you look after your mum, you also look after yourself. Best wishes. Xx
Hi Sara9 , so sorry for your situation. My mum died from metastatic breast cancer when I was 19 so a similar (and heartbreaking) experience. I’m 63 now and could still easily cry when I think about it in detail.
Somehow you will cope, you’re already doing amazingly by being such a wonderful support for her. But it’s really important that you get some support yourself, especially as you feel that your nearest and dearest don’t understand. Often those closest to us just don’t get it, so it can be better to seek support outside close family and friends. I would hope that the palliative care team may be able to put you in touch with some carer support. And like cuffcake2000 has mentioned, the Macmillan community supports all affected by cancer, not just those with cancer. So please phone the helpline here for further information about support for carers.
Another place I’d suggest is Future Dreams in Kings Cross - you could visit in person if you’re near london but they also do online stuff. I have only been there once but will definitely go again as it’s a lovely place - it’s for anyone affected by breast cancer. At the session (on diet) I attended there was a young lady there whose friend in another country had breast cancer so she was gathering information for her, which I thought was lovely.
There’s also a friends and family section here which you may already have seen.
I hope the meeting with the palliative team went as well as possible today. Sending love and a big virtual hug your way, HFxxxx
This is the place in Kings Cross….
It's very hard to come to terms with what is happening. My Mother had a Rocket drain. She had bowel cancer, she was in her 80s. It's an impossible thing to explain to your husband. I just felt stressed but tried to rise above it. I couldn't really admit to myself she was going to die until it happened. Part of my brain got it but another was just wishing it wasn't true.
I was so angry and unforgiving of people who let her down after she had died. I complained about who needed complaining about. Had bereavement counselling from the Hospice. My Mother had Alzheimer's as well. My husband was useless but it wasn't his Mother. Broke my heart going through this with her. It's made me more passionate in some ways. My son needs a lot of help. I push and keep pushing if he needs better care from the Health Service. He's Epileptic and Autistic.
Love your Mother as much as you can. You will never forget this and never regret your sacrifice. Remember yourself as well, having a massage or something occasionally might help. It's literally what we are here for I feel.
Hi Sara9 I’m sure you won’t remember me but I was diagnosed at a similar time to your mum and we talked before. I’m so sad for what has happened to you and your mum. I didn’t see you post for a while so I hoped it had been a good outcome for you both. I’m not sure you will, can or should accept what is happening but I hope you know that this is a safe space to come and vent your feelings and anger. Life is so bloody unfair, I want to rage against it all sometimes. My only advice is to see a counsellor, start now, I would recommend Macmillan to help with this but you only get a few sessions and you’re going to need ongoing support for longer than they provide help for so if you can afford it then find somewhere local. It’s normal to feel angry that people don’t understand and I know it’s for different reasons but I also get angry that people don’t understand fully what me and my daughter have been through, she gets angry sometimes too, but you’re right, it’s hard for people to get.
There is also a friends and family forum that is much quieter than here but I notice often there’s a couple of lovely posters on there who give very good support and wise advice. Just sending you love x
cuffcake2000 thank you for your advice. I’m sorry about your mum. Your mum was lucky to have someone like you taking care of her xx
I haven’t ever thought about speaking to someone together with my husband about all of this, but it does sound like something I would actually like to try, thank you for suggesting that.
Sending lots of love xx
HappyFeet1 thank you for your lovely words of comfort, I really needed it. Sometimes I do feel guilty for feeling the way I do because I think to myself that it’s not even me who has cancer, and it just feels like I’m making things about me. But knowing there is support out there for family and friends of those diagnosed reassured me that I’m not the only one.
sending lots of love xx
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