oncotype dx test - chemo decision

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so I am feeling quite angry because i was on the routine path, that starts, Oh don’t worry most lumps turn out to be nothing

 I knew it was something, the GP said i don’t feel it (wtf) and, most turn out to be benign. i knew it was something.

The mammogram and ultrasound showed something, the ultrasound tech was honest, yes something, this big. The surgeon also honest, then said yeah we’re sure its something. so the options are going to be either chemo or hormone radiation. if her + chemo first, If highly hormonal its just radiation and pills for maybe 5 years. it came back high hormonal, yah! meds and radiation timeline. 

oh no wait 6 weeks later the onco test is back, score of 35, so chemo is suggested, wait what? 

cause your score is 35 (26 being lowest not to recommend) but you wont see a onco dr for another 2.5 weeks, so i have time to mull..

Anyway am considering not doing chemo, (horror stories, hair, pain, lose bone density) (husband says i should, but its not him so) anyone else dealing with the decision. i have seen some say no brained, do it, but i also see. i did it, did nothing, i didn’t and its still not come back. i did and 3 years later feel like crap still. 

  • Hi Djct

    This is a very hard decision and as others have already voiced ….. a very personal choice. The difficulty with this journey is that it can start off on a particular path but then it can change as they are constantly gathering information and building a picture of how the cancer behaves. There are no guarantees either way and for me it came down to ‘what decision can I live with and not look back on with regret?’ There is no right or wrong answer and I wish you the very best in your decision Heart

  • If you do go for chemo make sure you mention the vein issue if a canula is mentioned. They might offer you a picc line or portacath. Or they might do this anyway depending on the drugs they are using. I went in expecting a canula ended up with a picc line as ec apparently can be difficult with a canula 

  • I had seven cycles one every three weeks 4 courses ec three courses docetaxel. I delayed one cycle by a week as I went on holiday for hubby 60th.