Triple negative IDC young mum

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Hi all,  

Freaking out, I’m 30 and have got a 3 month old son, I was diagnosed a few days ago with triple negative IDC and I’m waiting on results from my ct/mri so I can find out my staging/treatment plan but I already know it will be a stage 2/3 minimum as my lump is already at 50mm. I am absolutely terrified and emotions all over the place I need to stay off the dreaded google as that just fills you with doom and gloom!! If anyone is in a similar situation it would be great to hear from you so we can support each other x

  • Hello,  Just read your post and although I didn’t have triple negative BC I wanted to reach out and say it is a difficult time when diagnosed.  Certainly more difficult the younger you are too but the scientific community has made huge advances in the treatment of triple negative so outcomes are much better and you have good reason to be optimistic.  I know you have a little boy to take care of too so that sweet baby boy is a real blessing.  Hoping all your tests are good results and I know your treatment will be moved along quickly so take care.  
    There are many women on this site all ages and all types of cancer and we are all willing to share and help as much as we can.  
    Barbara

    Barbara 

  • Hi Han31,

    I am really sorry to hear about your diagnosis. I was diagnosed with triple negative on jan 21.I had chemo first and then surgery and radio. Chemo worked very well for me. My yumor was 2cm first, after MRI, they said 3cm. On second round  of chemo, my tumor was completely gone and after surgery they found no traces of cancer. I know it is difficult but please be positive. Triple negative is very sensitive to chemo. I tolerated chemo well and I could still do my near to normal life. I am a lot older than you, 46 at the moment. Concentrate on healthy life style as having a healthy diet will make chemo more effective. Hopefully, when you start your treatment, it gets a bit easier. Waiting is the worst part. If you have any questions, please let me know. I will be happy to help. Xx

  • Hi Han31

    i know exactly how you feel I was diagnosed with triple negative breast cancer on the 23rd of March. My tumour was small so they decided that they would do surgery first and I had that on the 22nd of April. I go back for my results on the 11th of May, which I am terrified about. i’m a lot older than you, I’m 58 just I too googled  and it is the wrong thing to do because they’re a lot of the information is old and there are lots of clinical trials and different treatments now for triple negative .stay strong and positive it’s hard I know, but you have a beautiful baby who will pull you through good luck sending you a big hug 

  • Hi han,

    I am 42 and at the beginning of March was diagnosed with TNBC IDC.  My tumor was 35mm Grade 3.

    Your emotions will be all over the place, I was a wreck.  The best piece of advice my amazing oncologist gave me was do not Google TNBC, it is very very out of date and will completely fry your brain. 

    I started chemo very quickly, weekly sessions of Plaxtol with every 3 weeks carboplatin and immunitherapy for 12 weeks altogether and then 4 rounds of EC After.

    Our cancer responds well to chemo and after just one full round my tumor had shrunk buy a quarter.

    Please know that things will be OK.  The beginning is truly the scary part.  The questions that go through our heads are enough to send us crazy but that's all perfectly normal. 

    I'm now 7 weeks in on treatment and have challenging days and moments but looking back to the beginning of this, it's a walk in the park. 

    I hope this helps and please feel free to message me any time.

  • Hi Han31

    Freaking out is completely normal! The period between diagnosis and staging is really, really difficult, especially when you have a baby,  and all the emotions you are feeling are completely normal. 50mm is fairly big, but my TNBC tumour was 42mm at diagnosis (Nov 22) with spread to one LN and my last MRI showed it had completely resolved within 5 cycles of chemo/immunotherapy - 2 more still to go!

    As others have said, try not to Google prognosis etc as all the information on there tends to 5-10 years out of date. Both stage II and stage III TNBCs are curable, try to stay positive and good luck with the staging results.