Why is everything so confusing !!

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Well still waiting for second biopsy - hospital says it’s waiting on delivery of Speacilists needles for this type of biopsy. 
but although I have spoken ( not had any face to face only with radiologist at first biopsy) to surgeon(privately) oncologist (briefly) and Speacilist nurse they all seem to focus on different things: B3 cells, LCIS, previous breast cancer history now today had a letter saying second biopsy will try to take b3 cells AND another area of micro-calcifications !  No one has mentioned another area of concern.

it feels like it’s all being hidden from me and I am being dripped information  since the original mammo in mid feb. Just feel really down as not knowing is awful. 
sorry for the moan … I know I should be positive but feel in a hopeless situation. Now have long bank holiday to get through … 

  • Hi ESTA

    Sorry to hear that you are still waiting on a second biopsy.  The waiting for things to happen is hard but hopefully you won't have to wait too much longer.

    Best wishes

    Daisy53

    Community Champion Badge

  • Hi Esta, understand how you must feel. I was called in for further biopsies. Took 5 samples from non cancer breast & further 3 from cancer breast. Think they were making sure that the non cancer breast was clear before chemo began. 

    Hope you don't have to wait too long. 

    x

  •    thanks for reply - my problem is I don’t trust anyone as last time they (doctors nurses ) all convinced me it was fine then when it was cancer it knocked me sideways. 
    Now it’s like a different story every time I manage to speak with anyone - it’s truly awful as my mind is going crazy! 
    hope your journey is nearly over x

  • Esta, I asked breast consultant & oncologist for copies of letters sent to my GP.  That's how I knew indepth details of my breast cancer.  Diagnosed in Feb 22 with Stage 3 advanced aggressive. Last year had chemo, mascetomy, more chemo, 3 weeks of radiotherapy in January 2023, back on chemo until Sept 2023. Hopefully will know whether clear of cancer at end of this year. 

    Really feel for you Esta as it is a very anxious & stressful time you're going through and not knowing isn't helping. Push for written copies of letters. 

    Let me know how you get on. 

    x

  • Hi Esta

    i am so sorry that on top of everything else you feel as if you are not being told everything …… it can send your mind into overdrive and down all sorts of rabbit holes! 

    As mentioned in a previous post, my surgeon sent me a copy of the letters he sent to my GP which gave details of my initial diagnosis, requesting them may give you some clarity. 

    I really hope you don’t have too much longer to wait …. waiting for results is the worst. X 

  • Hi Esta, I’m so sorry to hear you are waiting for this second biopsy, and that you’ve been told conflicting information. That must feel upsetting and confusing and add to your stress at an already uncertain time. 
    I’m currently also waiting for second biopsy results for a second ’area of focus’ picked up on MRI scan. Getting this investigated has added an extra 3 weeks of waiting since original diagnosis  in my case, which I’m finding pretty agonising. I just want to know what’s going on and for my treatment to start. I go back on Thursday for those results and am worried it will be another cancer.

    I agree, the long bank holiday weekend doesn’t help when you feel stressed and anxious, and it seems like everyone else is having a great time. Sorry I can’t change that for you but I hope it helps to know you aren’t alone - people on here understand and care about you. Sending you a hug, and hoping you get the tests and info you need very soon. Xx