Letrozole and Abemaciclib

Communication is so pants and is so annoying.  If it’s any help I am doing one thing at a time - surgery, chemo, radio, then tamoxifen on a temporary basis while I started zoladex to shut my ovaries, then switched to Letrozole and next week I add Abemaciclib to the pot.  That’s just how my consultant prefers to work and as I’ll be in on Letrozole for 10 years she didn’t want to rush it and have me confuse the side effects and get put off.  I think it’s really a question for your consultant and ask for their reasoning.  I got upset when my GP told me I should have been on Letrozole from my diagnosis which was when I asked for clarification of the thinking.  I hope you can get some answers.  My radio team didn’t even ask about medication..,

Hi, I have had situations where different people are saying different things, it's so frustrating!

I took anastrozole which is similar to Letrazole from my diagnosis, all through my 15 radiotherapy sessions. 

I started abemaciclib a few weeks after radiotherapy ended as oncologist wanted some of the toxity to leave my body before starting. A few weeks after starting abemaciclib I had my first Zoldronic acid infusion.

Personally I would go with your oncologist advice, not sure why radiologist would be involved. 

Hope you get sorted 

Best wishes x 

Yeah I’m shocked!  I’m going to start taking my letrozole tomorrow with the help of people on this site!   I finished chemo two weeks ago and I guess now it makes sense about the side affects.  By the time I finish letrozole and finish radiotherapy I should know about any side affects before I start the dreaded abemaciclib!! 

Hi Kitty

Shocking though to be told different things by professionals!!  How are you finding abemaciclib? I was so upset to read the side affects about hair loss when it’s only just started growing back, although my oncology didn’t mention it I seen it on the green form I signed!! How often are you having bloods?  xx

I mean by the time I start letrozole I’ll 

It really is stressful receiving conflicting info, I remember being upset, there was so much going on it just added to how I was feeling 

Im 6 months on abemaciclib, main problems for me are fatigue & tummy cramps & diarrhoea. I now have bloods once a month with review next day, was fortnightly at first. My white blood count dipped at the beginning but has recovered a bit now. My hair hasnt fallen out but is growing slower x

Kitty

I was so upset.  I think from celebrating finishing chemo only to be told about the same side affects, stomach, mouth and hair loss!  Especially when my consultant was telling me how nice my hair looked!!! Quite a few people have told me they haven’t lost their hair so I am  hoping and preying.  As if we ain’t been through enough already!  Thanks for listening to me rant and good luck with your continuing journey.  xx 

Not sure this will help but I started Anestrozole ten days after my operation so quite a few weeks, about 9 weeks before five days of radiotherapy. I am pretty sure I stopped taking most medication for the five days that I did radiotherapy and then started again straight after.