Paclitaxel, Carboplatin, Filgrastim help please

Hi Jannie1, sorry you are having some side effects and only able to talk to your oncologist over the phone. Have you asked whether you could see him face to face as it would be easier for you. I think to know if the chemo has worked you would need to have a scan to be able check. You could call the Macmillan hotline to discuss what you are going through as they would be able to offer advice. Or maybe have a chat with the Macmillan nurses here online. Please don’t feel like you are being a nuisance you need to know and be able to have answers to your questions. I do understand how difficult a phone call can be when someone has an accent it can be harder to understand. I do hope you can get a face to face with your oncologist to be able to sort things out.

Wishing you all the best on your journey.

Hugs from cuffcake x x x x x

Thank you Cuffcake2000. I have a chemo session tomorrow. I'll ask then if I can have a chat with the original female oncologist.  I've no complaints re my care.  Everyone concerned has been wonderful including the other patients.   I wish I had asked more sooner. Bit concerned as Reading 4 year old posts the suggestion is that paclitaxel was not effective and has horrible side effects.  However my BCN said that even chemo has improved drastically over the last couple years.

Love your user name, I misread it for Cupcake at first. 

Yes some of the Google info is out of date now and chemo treatment has come on so much now. Try and stick with MacMillan or breast care now websites. I’ve not had Paclitaxel I’m on Docetaxel and both I think have similar side effects but everyone is so different as to how they react. Reaching out on here is a great way to find out what experiences people have had. 
It was a nickname my husband gave me which was actually cupcake but I misunderstood him and thought he said cuffcake so it has stuck eversince. 
Wishing you all the best for your chemo tomorrow and for the rest of your journey.

Hugs from cuffcake x x x x x

Thank you. It was an older post I read on here when I used the search.  Thank you for giving your time on here, really appreciate it and the support. I hope you a doing well too.  I feel that I've joined a massive club that far more people belong to than I could possibly have imagined. Hugs to everyone  I do hope you are doing alright xxx

Hugs to everyone xx

Hi Jannie1,

I was on EC first, then 12 Paclitaxel  weekly and 3 weekly Carboplatin - the side effects were awful - but I got through with a lot of help from the nurses and onco team, not forgetting my husband who was literally a shoulder to lean on. There were days taking 4 or 5 steps was too much so I do understand.

It’s great when you finish and it goes away.

Hugs back

xx

Thank you Tendender.

I don't know what EC is. I had lumpectomy and then chemotherapy as a bit found in sentinel lymph node. . RT coming next along with oestrogen resistance drugs. Good to hear you were alright afterwards. Shame you had such horrible time. My partner has also been amazing. Without him I couldn't have coped. They come good when necessary.

Did your ongolgist explain why 12 doses once a week. Mine didn't, or i didn't take it in if she did.  I'm not sure if the Filgrastim has side effects too. It's all a bit s**f really but better than the alternative.

Love and hugs xxx

EC was the first set of chemo, can’t remember the name ! Had that for 12 weeks, but only 1 every 3 weeks - so 4 doses then onto the 12 weekly Paclitaxel/ Carboplatin.Don’t know why but it’s soon done.

The filagastrim didn’t bother me but I know some do have side effects. Everyone has a different reaction ! It’s the nature of the beast.

on the positive side, I had my chemo, mastectomy and finished radiotherapy - now I can walk my dogs - it seemed ages altogether , but they were so good and one for you to look forward to soon. 
xx