2nd biopsy failed! Feel like I am running out of time

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I am feeling frustrated and like my choices have been taken away.

I had a second biopsy done 3 weeks ago after waiting for 5 weeks after the first one to be told that there weren’t enough cells for the HER2 test to be run. Today I have been told this biopsy has been unsuccessful as the cells were crushed! So it is straight to surgery without knowing the HER2 status.

It is now 8 weeks since I was told I had cancer and tomorrow I have to decide what surgery I want. Due to how long it has been I feel like I have no choice but to not have a reconstruction (I was told 8 weeks ago it would be a mastectomy) as that means referral to a different hospital where I don’t know how long it will all take to be assessed and put in for the surgery. Having no reconstruction and remaining with my surgeon, I will still be waiting about 4-6 weeks for the surgery.

I was not sure if I wanted reconstruction or not, but I feel like I can’t be hanging around for too long as I don’t want it to spread and so going flat is really my only option! Has anybody else been through this? I’m hoping not!

  • Hi, gosh … that does seem like a long wait. I haven’t had a reconstruction ( I went flat) and so can’t really comment on that. To be honest, I just wanted it off, if you get what I mean. I’m not medically qualified, but as far as Im aware, and with respect to the surgery, it doesn’t matter if you are HER2 or not. That matters with the treatments outside of surgery. For sure, your tissue will go to the pathology lab after surgery, and the cells will be analysed then, even if you have had several prior biopsies. And that’s when they really know what they are dealing with and you will know for yourself. You’ll find a few posts on here where the pathology report post-surgery is different to the original biopsy. My own initial diagnosis was different to the pathology report. It doesn’t always happen, but it can. However, this doesn’t help you with respect to your surgery situation. I would ask for a specific date, if possible, and perhaps see how you feel about it when they tell you that. I’m sure someone else will come on with some experience around choosing to have reconstruction or not xx

  • Thank you  

    i am thinking that I will opt for a delayed reconstruction then I can get the cancer out but still have reconstruction if I want it later. My priority is to be alive for as long as I can be rather than to have two breasts. I have questions to ask but I think that is the way I am moving towards - I’m not sure I have the courage to go flat as I have always liked my cleavage and I don’t know how I will feel after the op.

  • Hi cloudier, I opted out of reconstruction simple because I don’t think I could cope with the length of the surgery and I also would have to wait for the reconstruction I have a 2 year plus to decide if I want to change my mind but I have told my surgeon I don’t want it mt own personal choice, I am booked in for a mastectomy on the 15th of feb next Wednesday I am really frightened like others here but it has to come of to get rid of the cancer, I myself like you am worried about being flat but it’s out of our hands as long as we are alive  stay strong I know it’s easier said than done, but remember this is a marothon not a sprint and we will come back even stronger x 

  • Thank you  

    i hope your surgery goes well next week. I am definitely having to adjust to the marathon mentality. I had thought it would be over and done with by now, I was very naive and knew nothing about the breast cancer journey.

    I have my list of questions to ask in my appointment tomorrow but I think my decision is between permanently flat and delayed reconstruction- who knows, I may be fine after the first op and not want reconstruction.

  • That’s the thing bea-me, we just don’t know until it’s done we can only take one day at a time we will be emotionally up and down but be kind to yourself you are still you but stronger and braver, that’s what I say to myself …good luck for tomorrow your in the best hands x