Don't really understand everything in my letter

Really sorry you’re in this position, and that you’re having such poor support. I’ll try and help with what I know, others I’m sure will chip in and fill in blanks. 

I’m not sure if the fact it’s divided into 1) and 2) means something, have you two areas of concern? Or could be two biopsy results? I can’t help with that, someone else might be able to though. 

U5 means that it’s breast cancer (U2 is benign)

G2 means the that it’s a grade 2 cancer which is to do with how the cells look under microscope.

NST means ‘no specific type’ which I know is annoying. It is probably invasive ductal but this is not for certain is my layman’s and unqualified understanding.

ER 5/4 means it it an oestrogen responsive tumour, the scale goes from 1-8. This means the tumour feeds on oestrogen. PR8 means it’s a progesterone responsive tumour, again same scale. 

HER2 is a kind of protein that some cancers feed on. Under 1) it’s says awaiting the HER2 FISH ( the name of the test) result. Under 2) it says your result is negative but pending the FISH result. 

DCIS is Ductal Carcinoma In Situ, this is a type of cancer that hasn’t spread, looks like that has a positive oestrogen and progesterone result. I’m sorry I don’t understand the IG. 

It’s really hard to say much more as obviously we’re not medically trained, I don’t know if you’ve two areas of concern or if they are the results for one area. It’s possible to have different kinds of breast cancer in the same breast. They’re not keen these days to stage a breast cancer, or maybe just tell people the stage, I only found out mine had been stage 3 after it was over.

hopefully you’ll get a chance to speak to your consultant soon. In the meantime get back into the breast care team tomorrow and see if a different nurse can help. Failing that ring the Macmillan helpline who are brilliant and will help I’m sure. 

Please don’t despair. This is a dreadful time for you to get this news and to have people not explain properly but so much can be done for us these days. If you click on our names, some of us have filled out our profiles and you can see our stories. All the best xx

Hi Sal.K, sorry you find yourself her and that you have not been contacted by your consultant and the the breast care team couldn’t answer your Anna12345 I think has covered everything and done so much better at explaining it that I could. I hope your consultant contacts you soon to explain everything and let you have a care plan soon. 
Sending you lots of love and hugs and hope all goes smoothly with the birth. 

Love cuffcake x x x x x

Thank you Anna12345 and cuffcake2000. I'm feeling really emotional right now not because of the cancer but because of the beautiful people on here. Can not thank you enough xx

Hopefully you got some rest. There’s always somebody on here who will try to help if they can, hopefully you get some more answers today x

Hi Sal.K and another warm welcome to the club none of us want to join. Sorry you find yourself here but it’s a great place for support and shared experiences. Lovely replies already and I’m sure someone else who’s been diagnosed during pregnancy will pop in at some point. 
Just wanted to add that I think (but again not a medic) that IG stands for intermediate grade for the DCIS. That’s good as not the quickest growing, so likely to take a lot longer to develop into invasive cancer (and my understanding is that some DCIS never does.) Im sure it will be evicted  long before it gets the chance. 
I hope you get some contact from the consultant very soon, it’s horrible not being sure what lies in store for you. 
Sending love and a big virtual hug your way, HFxx 

Thank you Hopi! yes you're absolutely right as I have had some lovely people (like yourself) responding on here (thank you everyone!) finding this site has been such a great help mentally and emotionally. I've always been a stoic person especially in public but I'll admit I did end up in tears and have a little cry when I was told the news because for me the first thought were my kids. But I'm looking forward with focus and positivity only now. I'm wishing you all the best xx and everyone else on here x