Devastated

Hello, I’m really sorry to hear of your diagnosis. Yes, it is devastating, and not surprisingly, you are in shock. I don’t know how old you are, or what kind of breast cancer you have, but I would try to find people with experience of this, if you feel up to it. I say this because it is so easy to become swamped down by what is spinning around your head. I believe that there is a ‘secondary breast cancer’ site on here. I do not have any medical expertise, but I did have a dear friend who was diagnosed with spinal mets. She died last year, but …. She was 80 years old, and she had been stage 4 for nearly 10 years (receiving treatment). Also, there have been new developments in primary and secondary breast cancer recently, and so I would explore these with your oncologist, Macmillan, and BreastCancer Now. Both charities have helplines I believe. You are not alone on this site … others will come forward, I am sure. Xx

Thank you for your reply. I am 50 with oestrogen and pedestrian positive but her 2 negative. I coped with the news until the mets and that’s what I’m struggling with. I’m grade 2. I certainly will explore other options whatever they may be

Yes, do that. My friend was also ER positive and HER2 negative. 

So sorry to hear your diagnosis.  Once your head stops spinning you and your husband will have a chance to talk.

 I have no medical knowledge but I send you love and luck.   Xx

Thank you.  Such a strange sensation….

Sorry to hear your diagnosis but there are a lot of women on here living with secondary cancer.  

Here's a link  Secondary breast cancer forum 

There are also ladies in the Awake which is just general chat.  It's been running years so just reply to last post and say hi. 

 RE: AWAKE.........

Thank you carol - I’m joining!!!

Newbie19 - i am very sorry to read your diagnosis. I have been recently diagnosed with Breast Cancer (i carry the gene mutation unfortunately) and am now waiting for my bilateral mastectomy. So i have some appreciation of the shocking news. BUT what i wanted to say is please remain positive and don't look too much at statistics as each patient journey is so different. I say this as my mother had pancreatic cancer and she just reached her 21 month milestone from diagnosis. She endured 12 months of treatments (chemo then chemoradiation) and both worked (chances were slim) where it needed to - to allow her successful surgery to remove it with no lymph nodes involvement. So if i believed in statistics her chances would have been low. I want to send you optimism and positive thoughts as you begin your journey. Keep fighting!

Thank you for sharing this with me. Today I’m being more positive and am ready to fight- sending love and luck to you on your journey too! 

I am so sorry that you are going through this. I am sending you lots of hugs.

I have recently found out that I have to have full axillary node clearance which was a shock and I wasn't coping very well. I have tried looking into things that will help calm me down as I am still working and couldn't focus. I've decided to look into complementary avenues.  There is some stuff out there which sounds bonkers and I have avoided this and told my BCN what I am doing. She thinks anything that is relaxing  will help. I tried Reiki for the first time and also Yin yoga. I find that just finding things that will clear my mind and help me relax make me feel stronger and a little bit more in control.  I know this sounds a little out of the box, but giving yourself some clear space and time may help?