New to the group

Hi Onthebay, sorry to hear of your diagnosis. I’m sorry I can’t help about TNBC as I’m triple positive, but there is a group called Triple Negative Breast Cancer which maybe will come up in a searchHope  you manage to find them. If not let me know and I’ll see if I can forward a link for you

Wishing you all the best on your journey,

Hugs from cuffcake x x x x x

Hi Onthebay 

Sorry to see that you have been diagnosed with TBNC.  Definitely stay in this group as it is an 'all encompassing group' for breast cancer - and much busier than any of the other groups on this Macmillan site.

There is a group for TNBC and here's the link to the group, but as I say, it is a lot quieter but you may be able to get one of the ladies on there who knows more about neutrofils.

Kindest wishes, Lesley

Hi, I didn’t have triple negative cancer, but I can comment on the low neutrophil thing. It didn’t happen to me - I had some kind of injection the day after chemo which helped to keep the levels raised, but I did see it happen to other people. I had my chemo on a mobile community unit and so we got to know one another. On at least three occasions, I overheard the chemo nurses telling someone that their neutrophil level was too low for chemo, and that they would have to wait a week (blood test first though). So in their case, the chemo was delayed, but they still had the same number of sessions in the end. On other occasions I’d see someone in the unit and they would tell me that it had happened to them. In other words they were supposed to have the chemo the previous week. They were always advised to try to eat well, especially good quality protein if they could. Then a week later, it would be ok again. The eating thing is important. I remember on the day seeing one or two people turned away as they had lost too much weight to take the chemo. Hope that helps xx

It’s not uncommon to miss a treatment- it happened to me several times. You should still get the same amount of chemo - it’s just added on at the end. I think many of us have been sent home with injections, Filagastrin (check spelling)my husband did mine, to keep the count up. I too am TNBC but am now through the process- hopefully- see Oncology in one year !

best wishes x

Thank you, that's helpful and encouraging. 

A the best in your journey, 

Alison 

Thank you Lesley, much appreciated 

Thank you. I have those injections but had been told not to have them that week. I then took them and have been OK this week thankfully. We'll done for getting to the end, I can't wait! 

Many thanks. I have found that group now. All the best to you

You will get there  - if I can , anyone can!
follow what they advise - they know everything!

remember - one step at a time xx