Newly Diagnosed Her2+

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Hi everyone 

By sheer coincidence when I rang the breast nurse yesterday she told me the meeting to discuss my biopsies had take place that morning and she told me my results over the phone. I’m really grateful for this as it means I’ve received my results a full 9 days before my next scheduled appointment. She’s now emailed oncology to get me an appointment as I need to start chemo as soon as possible. She told me I have her2+ cancer in my breast and lymph node. 

I want to ask if any of you experienced feeling unwell before you commenced any treatment? I feel so utterly fatigued and nauseous and I have pain down the inside of my left arm the side my cancer is on. Is it normal to feel like this? I’m fearing not being strong enough to get through the chemo I feel so awful. 

Thanks so much. 

  • So sorry you are facing this diagnosis but good that you are being seen promptly. I think most of us have had feelings of tiredness and aches and pains. It is like being hit with a sledgehammer when you are told you have cancer. Your brain goes into overdrive and you start imagining all sorts.  I expect the nausea is caused by sheer stress of the situation. I kept thinking that the cancer was in my lymph nodes and I could feel a slight swelling, totally unfounded.  It is a scary time but once you are in the system you will receive fantastic care. Everyone on here will be behind you. Take care.

    Evajean x

  • Thanks so much. I’m quite positive on the whole and I think a good nights sleep will help a lot. X

  • Hi Miss Tangled, sorry to hear of your diagnosis. That's great they were able to give you your diagnosis early. I found the waiting awful. I had triple positive in both tumour and lymph nodes. I didn't have the fatigue & nauseous but I did have a little uncomfortableness in the side I had the ops. (you can click on my name to read my journey so far) As Evajean has said your brain goes into overdrive and you do dstart to imagine all sorts, I know I did. I have just had my second chemo still have a chesty cough but they were ok to treat. I also had my arm port put in with the cough too. On my first chemo I had a bit of a chesty cough as I was getting over a sore throat and cold. I had this checked out whilst I was waiting for chemo and was told all was ok to continue. My oncologist had say that unless I was flat on my back with a cold or had covid generally they like to continue with treatment rather than delay. However I am guessing every oncologist will have their own preferences so it may be worth checking with them or your breast care nurse who hopefully can advise.

    Wishing you all the best for your journey

    Hugs from cuffcake x x x x x

  • Thank you cuffcake. You are right the waiting is torturous. I was so grateful and felt very lucky to have rung just at the right time. Thank you for the reassurance. I have to put my big girl pants on grit my teeth and get this done. 
    I hope the rest of your chemo goes to plan with minimal discomfort. Have to say ports don’t sound pleasant. Eek x

  • Hi Miss Tangled, I didn’t like the sound of it at first, but as I can only use one arm due to lymph nodes removed in the other I decided to look into it. I was worried about veins collapsing from chemo as it can be harsh on them and my veins are not so good, I think 8!sessions would have been difficult. Picc lines hang outside and need to be flushed and dressed each week and have to be covered for showering, ports you have flushed about every 8 weeks when not in use and they are under the skin so no worries with showering and getting on with everyday activities. I had mine put in my arm on Friday and it was ready for my chemo on Tuesday. Whilst it was a little sore just to start with paracetamol soon knocks that on the head. First use was a little sore as they have to press to feel for the access but again once done soreness goes. There is a numbing cream that works but you have to apply about half an hour before. I will see how it goes next time and go from there but then it will have settled more. 
    Wishing you all the best for the rest of your journey.

    Hugs from cuffcake x x x x x

  • Thanks so much. Reading others experiences is so helpful as I go into the unknown. There’s so much information to absorb. So many decisions to make. I appreciate you taking the time to type all that out and for sharing. It really helps. xxxx

  • Hello, Sorry to read of your diagnosis. I was diagnosed with Stage 3 HER2+ breast cancer in left breast and lymph in June 2021. Fast forward to now and I am cancer free. I had 2 lots of different chemo, herceptin for 1 year post chemo, 25 sessions of radiotherapy and left mastectomy. I felt fine before I started treatment and during treatment I had my moments but I kept working as it really helped me (reduced hours). Keep positive and look after yourself and let your Drs deal with the disease. Sending you hugs and positive vibes Christmas treeHeart️Christmas tree

  • Thanks Rumple. I saw Oncology on Thursday. They advised starting chemo 1st week of Jan. Have no idea if I’ll get an appointment for then. Our diagnoses sound very similar. I don’t what kind of surgery I will have until I know what effect the chemo has had. I feel surprisingly calm and positive. The waiting drives me a bit bonkers but I’m trying to enjoy the time of feeling relatively normal in case I do feel horrendous later on. I don’t feel sorry for myself because I know so many others are going through the same and often much worse. Thanks you for the  encouragement x