High grade DCIS with small foci of IDC - similar experiences?

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Hi all,

I was diagnosed with High Grade DCIS with small foci of IDC grade 2 ER/PR + and HER2 -.

I was called a complex case (loved to hear that!) as a combination of my youngish age and the fact that every test showed something new which was not anticipated i.e additional scattered microcalcifications in other quadrants of the breast and a separate MRI enhancement all classified as B2/B3 after further biopsies/tests. Current plan is WLE with therapeutic mammoplasty followed by radiotherapy, unless I won the jackpot with the genetic testing and we may need to proceed with double mastectomy instead. Although given the multiple findings I do wonder if mastectomy should be the best option in any case for a better outcome and whether I should push for that.

I was wondering if anyone else experienced DCIS with IDC diagnosed prior to surgery. How would the size of tumour be evaluated in this scenario following surgery? Would there be a distinction between the size of DCIS vs IDC or would they consider the overall extension of the lesion?

Also, how reliable is lymph node clinical analysis via ultrasound + MRI?

Apologies for so many questions. Had one of those sleepless due to overthinking nights! 2/3 weeks to surgery and another ultrasound today (hope no more biopsies!) Should have popped to say hi in the AWAKE chat!

Many thanks in advance. Xx

Hopeful Barb over 2 years ago in reply to NeedingHope

Hello there, When I saw my breast surgeon at my last visit we discussed my pathology report for breast that had DCIS and he said it didn’t matter how large or small the area of DCIS is it is always stage 0. I wondered because on my report it did not have how much DCIS I had it just said present. He said that could have been because it was scattered and and not close together so hard to measure. He did say that when you have an invasive cancer snd DCIS together it is important to measure both. That is what they did on my other breast so I had measurements. Hope your genetic tests are good with no surprises.
I see the other surgeon in February who operated on the breast with DCIS so will have a nice chat. I was scared to pieces when my original surgeon had a family emergency and was out for over 2 months so I had to have one of his associates do the surgery. I thought to myself 2 different surgeons with different techniques but they look good. Just be easy on yourself and don’t overthink like I did. I lost 10 pounds during the first 5months or so and it was because of stress. I stabilized after that time. I was eating good but my sleep was not great and my body was in overdrive which is not healthy.
Tips I learned.
Barbara

Barbara

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High grade DCIS with small foci of IDC - similar experiences?