Hi all, I’ve been following the current thread on recurrence rates for people who have been told that they have a high risk of recurrence. If anyone knows of a group or website that provides some positive vibes for those of us deemed to be of higher risk, then it would be great to share. For one thing, the Predict data is a tad out of date now. I believe that it is currently being revised and updated. For example, it doesn’t include anything for radiotherapy. Also, the data will now be based on patients treated quite some years ago. It would be great to hear from people (including men) who were told they were at higher risk, but 10, 15 years later, they are still ok!! I do personally know women (who I met via chemo) who are stage four data outliers. By this I mean that they have been stage 4 for at least 9 years and are still going strong!! Another reason why I would like to see some uplifting vibes is because I always feel a slight stomach churn when someone writes ‘thankfully it wasn’t in any of my lymph nodes, so that’s great news!! ’. Well it is good news, but having no lymph involvement isn’t the be and end all, which is why I think we aren’t told that we are ‘cured’. Sadly. I’ve read stories (on good sites like Breast Cancer Now) where no lymph was involvement found, but a recurrence has occurred. Which means, I think, that we are all at risk, but that some of us are at higher risk than others.
Hope you don’t mind me writing this, but I just hate people feeling frightened and overwhelmed by the info given to them by medical teams. Xx
