Had my meeting to discuss biopsy results today. The mass on right side is grade 3 triple negative invasive ductal carcinoma and the cancer has spread to my lymph nodes too. I have to go for a full body and bone scans to check if it has gone elsewhere and then I'll be starting with 6 months of chemo on a 3 week schedule before surgery and possible radiotherapy / other treatments. I have to have gene testing to help decide best surgery options. I also have to have another biopsy still on the other side as they saw suspicious looking stuff when I had my original scans but they have said they will deal with that alongside as we are wanting to start treatment ASAP.
It's likely I'll be looking to have a port put in as I have really bad veins, a massive fear of needles and my toddler runs the risk of pulling tubes out...they also said that the first few rounds of chemo would be EC but I have no idea what that means.
Has anyone got experience of chemo, having a port or can explain what EC means?
Hi Eileen, they have said it will be 3 rounds of EC initially then I think 3 of something else. They mentioned docetaxol and another one but I can't really remember the name. I considered the cold cap stuff but I don't think I'm going to bother. From speaking to a few people who have gone through it or know someone who has the pain from cold cap is horrid and it quite often still results in hair loss so I'm thinking I just bite the bullet and get rid as i think seeing it falling out in clumps and being patchy woukd effect me more. They warned me I'm likely to lose hair within 10-15 days of first treatment as its a high dosage regime. It'll grow back eventually I'm sure. The main concern for me is how my 2 year old will deal with it as she has only ever known me with long hair. I've seen some pretty head scarves and will probably look into a wig so hopefully that'll make things easier x
I have coped ok with the cold cap, and for me, psychologically it helped with things, losing hair slowly and still having enough to show from under hats. I have several beanie hats from Amazon. Our local Maggie’s centre did a tutorial on scarf tying and there are good You Tube videos too. To be honest, little ones seem to take it in their stride. You should get a voucher for a wig, I think it varies depending on which region you are in. Take care x
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