No plan with onco , so upset

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As loads of you know , I had my first onco appointment today 

waited an hour to be seen in clinic , only to be told that he could not give me a plan because I hadn’t yet had my liver mri ( that’s tomorrow ) 

So I’ve got another 2 week wait !! Im pretty angry , I flagged this up two weeks ago and BCN did nothing about it 

I just want a damn plan , I’ve been waiting weeks and weeks now and there’s always something thrown up !!

My sense of hope is going , I feel so desperate and alone 

Love to all

L xx

  • Morning Harley,

    It really is frustrating isn’t it, but we get through it eventually. 

    Let’s hope we all have a better day today Grin

    love & hugs

    D x

  • Hi Doria,

    Thanks my head is just a little sore.

    Thats fab that you’ve got through the chemo and almost at the next stage of treatment. How are you feeling now the chemo is finished?

    Im really sorry to hear about your cousin, not only will she be worrying and upset about her own diagnosis but the memories of what her mum went through too. 
    I hope you manage to speak with her soon, it’ll be nice for her to know she’s not alone especially in the early days of all the tests and waiting, which we all go through.

    sending her hugs and positive thoughtsHugging

    love & hugs

    Dx

  • Hey Wave tone1 

    Yeah I have Netflix etc so I’ve been watching some box sets Blush  The lighter hearted stuff is definitely best isn’t it , I don’t have the brain power to concentrate of much atm Joy 

    Im sorry to read about your cousin, that is so upsetting and with your aunty too Disappointed 

    Glad you’ve finished your chemo , onwards to the next part of your plan Muscle tone1 Blush 

    Love

    L xx

  • Wave tone1 

    Hope you have a good day ! 
    Im planning to go a walk today ( exciting Joy) I was walking every day and I’ve missed several days , it usually does my head some good 

    Didn’t sleep much ended up googling!! and reading sad things re spread to liver , argh why did I do it ?!! I’m panicking again that I can’t be treated effectively 

    Anyway sorry ! Hope you have a decent day and that onco get back to you with an appointment 

    love and hugs 

    L xx

  • Hey Harley Wave tone1 

    Hope  you hear from onco about your appointment or you have success chasing it up ! 
    Hope work is alright today Blush 

    love and hugs 

    L xx

  • Work was hard yesterday. Today it is much better as getting stuck into something so a great distraction . Xx

  • So sorry you have had some rough news on the family . Great idea to try to support one another though as it wi be great to talk with someone else going through it .  Xx

  • I have spare kit here a the time as a family member does mine on a weekly basis .  I think I am just a bit fed up with it now after 5 months of it and knowing that it needs to be in for at least another 3 months .  I will see about different dressings if this happens again xx

  • Oh glad to hear that Kissing heart 

    Hows the picc line ? 

    L xx

  • Picc line dressing is hanging by a thread I covered  it in tape but I am going to get it re dressed later . May do it after taking the dog in case it falls off again .  How you doing today xx