Arrggghhh.... Feeling frustrated and upset as emotions got the better of me.
My prosthesis appt had to be re-arranged due to it clashing with a chemo information session (which didn't tell me anything different to all the blinking leaflets) so got and answerphone message telling me 12.30 the same day then a text telling me 1.30pm. assumed I got the answer phone message wrong or they had to change the time so didn't think to check it.
Turn up at 1.30pm to be told I was late and it was 12.30. I explained I had a text telling me 1.30. She couldn't fit me as she had someone at 2pm. I got a bit tearful as I had built myself up slightly for this appt as I struggle with how the soft prosthesis looks under clothes as it is. She told me to come with her to sort it as I was upset so I told her not to bother and I walked out. I guess I didn't realise how much a flipping fake boob was affecting me. And I know I'm going to shut down and refuse to answer the phone if anyone calls.
Currently sat in the car having a little cry working out whether to tell hubby the truth or just lie and say it needs to be arranged as she had to cancel the appt at short notice
I don’t think they realise how changing appointments and giving us the wrong times affects us, we don’t want people to feel sorry for us so they fit us in, we what them to get it right the first time. I’ve had so many appointment times messed up, the first one when I had to have the wire inserted for my lumpectomy, had a letter saying in was 10.30 only to be told when I arrived that it was 1.30 in the afternoon. I’m also waiting on a phone call today from the Oncologist between 9 and 1, but it’s now 2.15 and still no phone call. I know they are all very busy but after going through a cancer diagnosis and surgery we don’t need to be messed around.
Sending you big hugs x
Hi VWgirl, I’m really sorry to read how upsetting this has been for you. It’s totally understandable that such a mix up when you’re trying to fight this awful disease would lead to upset and tears. I guess you’ve probably made your decision about what to tell hubby now. You will have made the one that’s right for you. Sending hugs and I really hope you get a new appointment very very soon. Micky xx
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Oh no that’s absolutely crap , Im sorry that happened
As Di said , they just don’t get the impact of these things on us
Hope you’re alright as can be
Massive hugs
L xx
That's crap! An apology would have gone a long way from her instead of telling you off for being late! Yes tell hubby why you feel crap. If he's a typical man he will ponder what to say or do and offer you a cup of tea
Hopefully they will rearrange and see you quickly. I just don't think some people understand how difficult things can be.
Sorry to hear about that experience. Whatever we feel is valid and different things upset different people. After 2 days in hospital the only time I wanted to cry was when I was leaving and they had no softie for me. I knew this was no-one's fault, op was changed to different hospital and I was grateful to get it in the pandemic, but was upset at having 2 hour journey with male patient transport volunteer and feeling lopsided. In fact we improvised with some padding, and I kept my coat on - and the driver was lovely, very considerate throughout. Although I wasn't around people over the next week, I was still very glad to get my softie - and later prosthesis. These things are very important to us, we have enough to cope with, and I hope you get yours sorted soon.
Sorry to hear this. Like others have said, they often see these as a small thing but for us we’ve been waiting and building ourselves up to it. In my recent experiences I’ve had some good care but also felt a distinct lack of care and accountability at times, where I’ve felt fobbed off or the truth glossed over. Tell your hubby, I think it can help them understand how things affect us. X
Thank you all. In the brand scheme of things it seems so trivial. I just told hubby there was a mix up with times and it had been re-arranged. It's actually shortly after my bloods and covid swabs
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