Breast Cancer / 2nd year test

FormerMember
FormerMember
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Hi All, 

This is the first time I've entered anything on this forum or indeed a blog of any kind. Where do I start? I was diagnosed with Stage 1; 5mm; slow growing, Oestrogen driven breast cancer December 2019. I was told that I was lucky and if one had to have cancer this was the best scenario - funny I didn't feel lucky; but I do appreciate that there are many of us in a more critical state/stage. I had a lumpectomy operation and 5 lymph nodes removed in January 2020. I was initially told that they were unsure if or the lump or some of the lump had been removed; imagine my relief when they finally told they believed it had.

I developed extremely painful 'Cording issues'. Once the Cording issue was under control; I started a 24 day (excluding weekends) radiotherapy treatment in March concluding in April.

As you know this was also the period that Covid was quite aggressive. I lost my Father during this period. At the end of my radiotherapy treatment; I became extremely ill; I wasn't sure if it was due to the radiotherapy or I too had contracted Covid; thankfully; I recovered but was still experiencing a lot of pain in my operated breast; but I was told this was normal and I shouldn't worry. The joy I fet when I was told I was in remission at year 1 check and that the pain I was still experiencing was merely a small amount of fluid from perhaps scaring tissues. My oncology and I came to a joint decision that I would not start taking  Anastrozole as in my case the benefit vs side effect may be unbalanced.

During July/ August I started having extreme pain; it was painful to get up from sitting and if I stood too long, I either fell over or my legs started to wobble. It turns out that I needed both hips replacing as my joints were completely worn. Due to the long waiting list which was exasperated by Covid I told this would not happen in the immediate future on the NHS. Thankfully, my husband has a healthcare package with his workplace. I had my first hip replacement in September 2020 and my 2nd in February 2021. It was an uphill battle but I was determined to not give up and now walk and swim easily. 

We started making plans, deciding on on the fun things we wanted to do going forward and not to waste time. I began to feel 'human' again; my on/off state of low periods started to disappear and I was smiling, laughing and joking frequently again. Then I was called for my year 2 check on 13th January 2022; I had no results for almost 3 weeks and was beginning to think all was well because if it wasn't surely they would have contacted me by now.........Wrong, I had a call on Tuesday 8th February to say that had seen 'something' and I need to return to have it checked...that's all I was told - my appointment is for this coming Thursday (17th)..... over a week away....my mind is in a whirl again....

Has anyone gone through this ? What might I expect ? Am I being over anxious ?

  • It could be absolutely anything. It could be a cyst, a thicker area of tissue, scar tissue, a weird shadow that comes to nothing. When you’ve been this road it’s so hard not to let your mind run away with you, but you know you can only deal with facts, not what ifs. Hopefully they’ll be able to put your mind at rest, I know you can’t help but worry though. All the very best and fingers crossed for something of nothing xx

  • Yes me., twice.  So my story:

    In May 2015 age 51 I was recalled from my first routine screening mammogram for 2 areas of calcification (10mm & 5mm).   I had 12 biopsy samples taken and I was diagnosed with intermediate grade DCIS in the 10mm area only.  The smaller area was benign.  I had a WLE in the July and radiotherapy in the September.  11mm high grade DCIS was final diagnosis after surgery.   I did not require hormone therapy.

    June 2016 & 2017 1st  & 2nd annual mammograms and all is good. 

    Oct 18  annual mammogram getting later each year due to backlog.  I had results on day and they saw something on my good breast.  They asked me if I had bruised it and I honestly didn't know as I'm a G cup so knock them a lot.  They did a biopsy there and then and said I'd have results 5 days later.  I sort of had results.  The good news was biopsy indicated it was a bruise but they wanted to re do the mammogram to check and no appointment for another week.  Thankfully what they had seen was no longer there.

    Oct 19 and Nov 20 annual mammograms all good and signed off as I had reached the 5 year mark.

    Nov 2021.  Now  back on 3 year routine screening and I was recalled.  All they would tell me was they had seen areas of concern on my left breast, the one I had DCIS for.  An anxious 10 day wait before appointment.  This time though as soon as I arrived I saw a BC nurse.  She explained that they wanted to look at some areas of calcification on my breast.  She said they wanted magnified images of two areas to compare to their 2015 images.  I asked weren't they comparing to 2016-2020 and she said yes but for screening they wanted to check to 2015.   The radiographer put little sticker on my freckles, moles and was focused on two areas in lower breast.  A shortish wait then I saw the doctor who immediately told me everything ok.  He then showed me my mammograms and the tiny areas of calcification that they wanted to check were stable.  He told me screening unit extra careful with BC patients to not miss any changes.

    It's an awful time when you find yourself back in limbo again.  The waiting seems endless and your mind runs away with you.  xx

  • FormerMember
    FormerMember in reply to Grogg

    Hello Grogg, thank you for your response and for sharing.
    What a journey you have been on; it’s wonderful to hear all is ‘well’ for you at present.

    I’m encouraged hearing about yours and others journey. I’ll share my update after my appointment. X

  • FormerMember
    FormerMember in reply to Anna12345
    • Dear Anna12345, Thank you for responding. I’ll try and hold onto the possibility of it  being something small such as a cyst or scar tissue. Sorry for being a worrier;  Only 3 days to go now for appointment. I’m holding onto my faith and praying for each and everyone of us going treatment and/or uncertainty at this time. X
  • All of us would be worried, you can’t help it with what we’ve been through but do try hard to distract yourself Heartx

  • Hello im sorry you are going through a toigh time again, thinking of you. I was diagnosed in march 2021 with triple negative breast cancer and finished all my treatment in dec last year am just on hormone therapy now. I too worry about reoccurrence and even have dreams about this which is scary. Im hoping that you are doing well. Xx