Second recurrence on mastectomy scar all within 5 months …..finding it hard to keep going

  • 8 replies
  • 283 subscribers
  • 917 views

Tonight I visited my surgeon because I found a small nodule on my mastectomy. 6 weeks ago I found a similar nodule and he took it away along with the grade 3 triple negative cancer they found. Tonight he was concerned about this new nodule and under local anaesthetic removed it to go to pathology. I feel absolutely defeated by this latest find. I’m not sure how you pull yourself up again to go on! This is my 4th find in a year. Thankfully I am keeping a close eye on my scars and oiling it everyday. I’m due to start chemo on the 10th Feb and am already anxious. This has thrown me. I just needed to write it down and put it out there. Is this journey ever going to end in a positive way.

  • I am so sorry to hear this. I don’t know how you find your way through, but I am sure you will. Stay strong and be kind to yourself… this is utterly crappy news.

    I don’t know you but am sending you strength and best wishes, as I am sure this whole community will. Xxxx

  • Sorry to hear this Whitestar. Im just glad to hear you are so vigilant in detecting the lumps quickly but as if you haven’t been through enough already.  I did just wonder if you have had genetic testing? I go for my results for this on Friday. I am TN too and currently having chemotherapy, 3 EC so far then three Paclitaxel next.  I haven’t found the EC too bad.   Good luck and hope this new nodule turns out to be benign xx

  • Thank you. I know I’m gonna have to pull in all the reserves now cos I’m feeling so low. Thankyou for replying though I’m really grateful for the support. Xx

    Jane

  • Hi there, yeah I know I just am so paranoid now. I know what they look like, these little nodules. I’m just worried that the next time there won’t be a nodule and it’s all happening under the skin.Honestly my head is gone with this. I thought after mastectomy that was me kind of done! Then having to kind of fight my onco for chemo after the last find to now this. My surgeon is backing me throwing everything At this 100 which I’m grateful for. Some days are really hard. No I haven’t had genetic testing… maybe this is something I will ask about. I’m getting dox something chemo. I’m glad yours is going well so far. Will be thinking of you. Thankyou for replying …. Hopefully today will be a better day xx

    Jane

  • Glad to hear you have a surgeon who understands. Has your diagnosis been TN each time? I was wondering why you hadn’t had chemo previously if TN each time as  my surgeon strongly advised chemo even though I had lumpectomy and clear margins and no nodes affected. Hopefully chemo will be the answer for you now to prevent any further recurrence xx

  • My 2 initial diagnosis were dcis then at Xmas I found a nodule on my mastectomy scar and it was grade 3 tn so it had changed! I had radiotherapy after initial diagnosis and then thought mastectomy was it. I have to say I have hit the wall today… not sure how I pick myself up but I guess I have no choice. Thankyou for replying and please god chemo helps to put and end to this. Xx

    Jane

  • I’m completely understand how you’re feeling right now but sounds like you have found this early with your vigilance and not long to wait now for chemo and hopefully putting this behind you once and for all. Keep us posted.  Hugs xx

  • Thankyou. You’re so kind Heart

    Jane