Answers at last

So sorry no one has answered you so replying to get you bumped up the listing in the hope that some amazing woman answer you. Love from Ann

Sorry I find your post hard to decipher, particularly towards the end! I have RA and have had it for 10 years so can offer you some advice and guidance in that area. Are you saying you’ve had RA pain since age 22?? What treatment are they offering you for the RA? I’m also incredibly sorry to hear of your stage 4 diagnosis, it’s great news your scans are currently clear though xx

Lol writing at 3am not good .I had arthritis symtoms since 22 but was doing ok till ten years ago got so bad in hands but docs didn’t really check so was cross that it took cancer to get it formally diagnosed. Hard to miss now as joints deformed and feet acting up etc so start steroids next week . It can really bring you down tho . Thanks for reply xxxx

Sorry! One of those weeks. I feel so sad for you that you’ve been in so much pain for so long. It can really bring you down, the pain I’ve had has been all consuming at times definitely. Are they going to give you other medication asides from the steroids to try and control it better? DMARDS and biological drugs that they have can really make a huge amount of difference to your prognosis x

The doc I saw not my usual one so thank god he was on that day he noticed straight away so has set ball rolling for proper care in rheumatology dept etc but the steroids have helped me I still have effects but not in as much pain in hands I feel hyper tho a busy busy lol but any time on chemo literally could not sit on steroid days …my husband says I’ve more energy than him and kids together whilst on them. I do get a bit of a crash a couple days later but I’m aware now and watch out . I heard of biologics and apparently they don’t increase risk of another cancer it’s the RA that can ever so slightly but a very slight risk is with anything so the ability to have quality of life worth it to me . I love being busy lol hope you doing well on them and get relief it nearly hard to tell sometimes which is worse cancer or the RA …thank god I’ve developed a sense of humour and thanks for reply I appreciate it xx

Yup I hear you, my RA has given me some very very dark days! The steroids do help so much until rheumatology can get you more long term support, thank god for a resilient sense of humour xx