I was diagnosed in Oct with encapuslated papillary carcinoma treatment plan lumpectomy and radiotherapy. However curveball the histopathology raised an anomaly and after a very long wait. ( another story) I got the results sent to me. I appear to have a rare diagnosis main tumour was indeed papillary carcinoma non invasive insitu & DCIS however adjacent cells show invasive cancer.
I have yet to speak to my consultant as I had the report sent to keep direct. As the initial diagnosis was non invasive I realise they will now need to check my lymph nodes to check for cancer cells.
Has anyone experienced anything similar?
Hello Underwatergirl. It can be quite common for an initial diagnosis to change following surgery. I was initially diagnosed with invasive cancer but following a lumpectomy the pathology report identified some DCIS cells adjacent to the invasive tumour, which had not been picked up by earlier biopsies/scans. DCIS can change to invasive cancer and I understand that it's not that unusual for these two types of cells to be found together. My initial treatment plan was a lumpectomy & sentinel lymph node biopsy followed by radiotherapy but as cancer was found in one lymph node and not all margins were clear this changed to 6 months of chemo after the lumpectomy, followed by a full lymph node axillary clearance and further re-excision. Treatment plans are tailored to the individual and things like the size and grade of the cancer, as well as the type, will all be taken into account when finalising a treatment plan for you. Unfortunately, as many on here will know, curveballs can be part and parcel of a breast cancer diagnosis and treatment plans can frequently change. I hope that now that the histology report is back your medical team/ MDT will be considering how best to treat you and will keep you informed of any changes without you having further lengthy waits. Have you been given a date to discuss the results with your consultant?
Thank you LalaLou that's very helpful. I was aware at my last appointment to expect possibility of further treatment for lymph if invasive. Until then I naively thought the diagnosis just that. It was all going so well up till then.
Unfortunately I had to go through PALS to get my results,which were long overdue and no action by my medical team to chase. I only got them sent Friday so hope that this will spur them into action!
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