Aches and pains and rheumatoid arthritis

Hi Anna just replying to get you bumped back up to the top in the hope that you get relevant replies.

Thank you x

Hi since my chemo I've got neuropathy in my legs caused by the chemo drugs and really bad joint pain hence why I'm sat here at 2.30 in the morning with pains in my legs I've been told that I'm over the 12 months where my pain and mobility should have come back so they say I'm left with it now my back feels like it's goin to break into most days and my arms are that sore some days I just don't know where to put them for the comfort I was told I have osteoarthritis now brought on by the chemo drugs hope this sort of helps in some way but bare in mind everyone is different good luck xx

Thanks for sharing with me. So from your experience the joint pain I’m experiencing could well be the chemo and not a reoccurrence of my RA, I’m not sure if that’s a good or a bad thing! My rheumatologist said that sometimes the RA doesn’t come back after chemo and obviously I was hoping to be lucky. I’m starting to realise that it’s not as simple as that. Can I ask, is your pain constant or does it have peak times, say mornings or evenings or worse as night? I seem to have  days where I’m much better and then days where I’m literally in agony, it also seems to move around my joints rather than always my legs or wrists, etc x

Anna12345   Really sorry you have RA, that’s tough.  I had terrible pain during chemo and also RT - had to get sticks as I could barely walk.  I had some coccyx pain before diagnosis but the chemo sent it into massive nerve spasms.  I’ve since had some joint pain.  I found that sometimes getting to standing from sitting everything felt so stiff.  Getting down stairs I have to hold on with two hands.  I have a bit of arthritis in my lower back and inflammation of the sacrum.  What you have is of course much worse as you had it before BC we do try to diagnose ourselves as we know our bodies.  I’m trying to walk every day but can’t right now because of my eye op.  I try to do a bit of Pilates but it’s very intermittent, like 5 mins at home.  I’ve started taking magnesium which I swear is helping.  I hope you find an RA Buddy so you can compare notes.  Take care best wishes J xxx

Thanks for sharing all that, so! You are also confirming my suspicion that what I’m feeling might not be straightforward! I’m going to discuss it all through with the oncologist on Wednesday, is your pain constant or do you have times when it’s worse? X

Anna12345. The pain is worse getting up in the mornings and after sitting down.  Sometimes I think my knee might collapse when I’m walking.  I still maintain the magnesium is helping but I’m having a bit of trouble in my right hand which might be arthritis.  I think the magnesium helps with the general aches but I don’t know anything about RT.  Good luck xx 

Great, thank you xx

Night time seems to be worse for me no my pain doesn't move around but when it comes boy does it especially in my leg to the point sometimes I'd love to be without it my leg that is I know it sounds really drastic but that's what pain can do to you sometimes but thankfully them nights are very few but remember everyone is different xx 

I truly empathise! Thank you very much for letting me know x