Hello everyone.
I am now getting worried about the delay in my treatment after surgery.
I was diagnosed with ER8 HER2 negative in September 26th 2021. I had mastectomy with immediate diep reconstruction in November 2nd. There are 7 out of 16 lymph nodes affected. Chemotherapy was planned for December 22nd, but the treatment was transferred to a closer clinic and that extended the treatment plan to January 4th 2022. Tested positive of covid-19 on 31st December and I was told to wait until 18th January because the clinic uses 14 day period to confirm if the individual is cleared of the positive test.
I am trying to "worry less" as that will not change anything, but I keep counting the months between the diagnosis and 18th January. Please, has there been anyone with the long time delay as this? Any thought or idea on the possible effect of this will be appreciated . Sorry for the long post.
Thanks
How frightening to have a delay like that. I’m assuming you’ve had your lymph nodes removed too? I’m not medical but I’m sure you had mri and bone scans that showed no spread? And you’ve had your breast and nodes removed? In which case a delay of a few weeks will make little to no difference as upsetting and frustrating as it is. We worry about everything though don’t we, can’t help it! You’re doing the right thing trying not to worry too much, I’m sure the Macmillan nurses can reassure you too, I’ve found them very helpful in the past, all the best x
Thanks so much for your response, Anna12345. Yes, bone and CT scans showed no spread. I had axiliary clearance during surgery. I am just anxious about what I risk by starting chemotherapy this late and if it will still be effective to stop the spread of anything "if" there is any microscopy cells that escaped surgery.
I will contact the Macmilian nurse as suggested.
Thanks again
If you've had surgery and it has removed everything, including the lymph nodes, then any stray cancer cells - IF there are any - will be killed off by the chemo once you start. The operation is the 'main event', chemo is trying to reduce the risk of it coming back.
I had chemo ahead of surgery and in that instance there is an optimum time - they told me between 3 and 5 weeks following chemo is the best time for your op, but that is because you still have cancer and when you stop chemo, it can start growing again.
As far as your MDT is concerned, you are currently in a good place - cancer removed.
The good thing is that you are getting chemo and you will start soon. I hope you have been OK from covid.
Thanks Beatthebreast for the reassurance. Yes, I am OK from the covid. There is no a single symptoms up till now. I have done the lateral flow, which is negative for 4 times now.
Thanks again for taking time to respond.
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