Hi
I have been trying to get an accurate diagnosis of my bone pain and after scans and blood tests I am nearly there. Although there is little evidence that I have found that oncologists will admit to I am lucky to have a very supportive GP who has gone the extra mile to try and get me some relief from the chronic pain that I have been in since starting taking Anastrozole and still since ceasing it. So the new diagnosis is Polymyalgia Rheumatica and we start steroids soon. My breast cancer care team had no idea what was causing my pain so I have not been in touch for a while. This cancer journey is hard enough, but if we cannot get even the basics of support what can we do ?
Any help and feedback would be gratefully received.
Take care everyone out there , hugs
Hi Casput,
Thanks for posting this. I have been in extreme pain for months now. Started on Letrozole, then switched to Anastrozole hoping it would improve the pain, but it hasn't.
I am speaking with my oncologist in 2 days time and I want to stress the pain I'm in. Since reading your post I am going to press him about the Polymyalgia Rheumaticia. If there are blood tests that can be done I want them. If I have to go to my doctor for them then I will. But I feel that as the oncologist is the one who puts you on the Anastrozole, etc, then they should be the one to find answers to this painful side effect that so many of us seem to be suffering from.
Hope the steriods help quickly.
x
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