Good evening,
My wife had her first occurrence of BC back in 2014. Stage 1, grade 1 and treated with bilateral lumpectomies, radiotherapy and tamoxifen for 5 years. Her prognosis was very good and there have been no issues until she was called back for some areas of concern on her annual scan in January 2021. The oncologist was not overly concerned but requested a further scan in 3 months time. This has all coincided with some worrying and deteriorating back and rib pain since April, culminating in a hospital admission at the end of November. Several scans have revealed some hairline fractures in her vertebrae and the general concensus is that it is bone metastasis - there is no official diagnosis yet but all signs are that this is what we are looking at and are anxiously waiting on biopsy results. She has been discharged at present but this was driven more by Covid restrictions and in my opinion she is still too poorly to be at home. I am capable of looking after her but I am concerned that she has lost weight and is worryingly weak and limited in mobility. She is on some strong pain medication which is affecting her appetite and energy levels. The biggest concern is that I feel as though I am watching her slip away while we wait on results and follow up appointments. I have no doubts she is seriously ill and feel so frustrated that nothing seems to be happening to improve things. It feels like every day is a day wasted and I can't get past the image that the cancer is just doing more and more damage while she waits on a treatment plan.
Sorry for such a long post but I am so worried that nothing seems to be happening to help her.
Thanks
Hi Above The Clouds so sorry to hear you and your wife are going through such a difficult time, and for such a long period. I can understand how worried you must be. I think if you continue to be worried, you might want to talk to her GP or consultant to ensure they are updated with her situation and your concerns.
I also thought you might be interested in this link (Link here) to the Carers group as you might find others in a similar situation on there. Sending best wishes to you and your wife
Thank you, irishgirl16, I appreciate you taking the time to respond. Thank you also for the link, it is a very useful resource, albeit quite a difficult read in places.
i am quite an obsessive personality and overthink a lot of things but I am having real problems dealing with the limbo period between results, diagnosis and treatment. It feels like there should be more urgency. I have concoted scenarios in my head, firstly it is not urgent so they can't be that worried about it, secondly, it is so bad that little can be done. I'm sure the reality is somewhere in the middle of these two but it is consuming me at the moment. 
Hi, when I was first diagnosed, I found the limbo periods, the waiting and uncertainty, to be the absolute most difficult thing to deal with, and I see many others on here with the same feeling. What worked for me was a real focus on compartmentalising by making a very deliberate effort to focus on the things I could control - what I ate, drank, exercised etc. I also kept busy to keep my mind from wandering. Whilst this doesn’t take the worries away, for me it helped manage.
Best of luck, especially in this period of unknown.
