Gilbert's Syndrome and BC treatment

2 replies
274 subscribers
656 views

Hi to all. I'm putting out this message to anyone here who is undergoing treatment and who has previously been diagnosed with Gilbert's Syndrome. I have GS myself, and would like to try and understand if the effects the treatment is having on me are similar to other GS club members. This would help us all, in that we could possibly swap ideas on how to help ease the side effects, and feel better about the whole thing in general. So, if you have Gilbert's please give me a shout! In the meantime, stay strong and keep up the good fight!

Jacala over 3 years ago

I have GS. I didn't know until after I'd had my first chemo. I saw my oncologist after my first chemo for a post chemo appointment and he said my chemo had been at 70% as my bloods had come back with raised levels of bilirubin and he suspected GS.

My second chemo was at 90% as my levels were better and my third was at 100%.

I think the majority of people don't know they've got GS until something like this happens and bloods are checked more thoroughly.

I also arent aware that there's anything you can do about it? Correct me if I'm wrong.

Lou

Jasa over 3 years ago in reply to Jacala

Hi Jacala. Thanks for replying. That's interesting about the percentage of chemo success. My team has not discussed this with me. Now I know about it, I can ask. And I'm glad it got back to 100% for you. All the best in your journey.

More from this forum

Gilbert's Syndrome and BC treatment