Hi everyone I was dianosed with a Grade 3 Carcinoma back on the 2nd July, I am HER2 Positive plus ER+, after three operations they finally got my margins clear and no cancer in lympth nodes, i had a very small tumour it was 10mm altogther, I am told now the tumour is finally gone, however I need Chemo and Radio because of the grade 3 and Her2+, after what i have read this scares me and wondered if anyone else on here can give some advice, I am told I will have herceptin as well. I have my oncology appointment on the 1st and been told I do not need any MRI or Scans as was small and not spread to nodes?
I am just so anxious all the time thinking about it, please tell me it gets easier once you get your treatment plan. My Summer has been awful, I have lost wait because I am so worried and find eating really hard, any tips would be great.
It's my sons 30th today and we are all going for a meal which I am dreading because I just cant eat at the moment.
the thought of reaccurance is always on my mind as well? maybe because of grade 3 and HER2+ I just dont know??
thanks for listening
xxx
Sorry to hear youre feeling down. I have cancer which has spread to the spine and the sternum. I lost a great deal of weight when I was told this and went right off my food and now my appetite is still poor. However, I do find that an alcoholic drink before a meal does help. Perhaps if you had a light starter and dessert this may help. I know how you feel and it is hard for other people to understand. Big hugs Suexx
I found it got a lot easier when the treatment plan was confirmed. It's something to focus on and plan for. I was diagnosed about the same time as you and I also feel I've lost a summer to cancer. A small tumour and clear lymph nodes sounds like good news and something to be positive about.
It's not long now until the 1st of October so I really hope you get the reassurances you need then to get back on an even keel. I'd say just eat what you fancy when you fancy it until your appetite returns. It's so easy for us to put more pressure on ourselves. Your family will understand.
I've tried really hard not to worry about the things I have no control over - it's a work in progress! I do hope you're able to enjoy your son's birthday today.
xx
Hi Somersetlass
Welcome to the forum and sorry to hear that you have breast cancer. It does get easier once you have your treatment plan because it means you are starting the fight against this disease. Your medical team will do everything in their power to make sure you get better.
Wishing you the best of luck with your treatment when it starts.
Best wishes
Daisy53
Somersetlass
Hi I'm a year on from lumpectomy and lymph node removal, chemotherapy, and Radiotherapy. Now on Letrazole till 2029.
It does get better,still a few issues with Letrazole side effects, but its early days only been taking it since feb 2021,tried 2 different brands so far,as was told the different brands can be different ,as some brands suit people and some don't. But you have to persevere for around 3/6 months if you can,and if still experiencing problems then try a different brand. I'm on Accord and am seeing how this one pans out. But yes it does get better in time.Hoping the side effects if the letrazole will too.But you may or may not have to take it,I don't know. Your oncologist will tell you.
Hi Somersetlass
I think you should congratulate yourself for having got through all those operations, as the thought of an operation really scared me !!!! You have done so well !!!! I went off my food a bit, and after my first op could only manage porridge and cake because of a sore throat. I bought the cake to celebrate getting rid of the cancer by having the op and also because we hadn't celebrated my husband's birthday properly, as the op was in my mind so much. So I'm maybe not the one to advise you on a healthy lifestyle. I believe in celebrating though and even if you don't feel like eating at your son's birthday meal it's a lovely social event and I'm sure your family will help you overcome your natural anxiety. Have a chat with your Oncologist about your worries about re-occurence. That's what I did during a telephone appt with Lead Radiologist after my radiotherapy. who reassured me that the radiotherapy I had was curative. I do hope you all have a nice time today. Eating littler amounts often helps, and fruit maybe ?
Thanks for your messages everyone. I was very anxious about going but in the end I really did enjoy it and didn't think about cancer for most of the afternoon. I hope that my oncologist will try and put my mind at rest on Thursday as I have read some really positive success stories on here regarding Grade 3 and HER+ and the targeted treatments they use now I just need to try and convince myself, but it is early days yet and I really do hope that one I start my treatment some of my anxiety will lift or at least get better. Good Luck everyone xx
Morning Somersetlass, I have just had a lumpectomy for grade 3 and no MRI. I feel so much better mentally after the op so I’d say it definitely gets easier mentally. Like you I lost my appetite through the shock I think so I used this time to give up all the things I craved, chocolate, dairy and wine (wine was most difficult) and gradually my appetite has returned and I now have cravings for kale!! Good luck for Thursday’s meeting. I found lumpectomy just left me feeling sore afterwards so hope you have a similar experience xx
Hi Yes I had to have three surgeries to get clear margins and I think that in itself has made me very vulnerable. Yes I am still a bit sore but am told this will get better with time. I was first diagnosed on the 2nd July so I am keen to start my treatment plan in the next couple of weeks. I hope your lumpectomy was a success, what follow on treatment are you having?
Thanks Jayne, hopefully I will get the reassurance I need on Thursday. I am having Herceptin as well due to HER+ Take care Deb
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