HER2 positive

• Yes still having the cold cap , lost a few strands but not much xx

Hello I am not doing very well and you are the first person that sounds like they have similar to me that has a positive story. I have grade 3 HER2 positive ductal carcinoma that is estrogen negative. I am so scared and having to wait until 23rd November for my op. I am 38 and I keep hearing this means it is fast moving. They are doing a wide local incision and I don't know why they won't just do a mastectomy. I don't get chemo before and I don't know why. Thank you for a small glimmer of hope xx

Hang on in there, I am sure you will be in good hands. I only had chemo before surgery as the cancer had spread into numerous lymph nodes, I went for a lumpectomy because I did a lot of research and the reoccurrence rates didn’t seem much different v a mastectomy. Also as it’s followed up by radiotherapy and herceptin injections for the HER2 this made the chances of non re occurrence even better. Although HER2 is faster growing and spreading the treatment is very advanced now and effective, the herceptin makes the HER2 protein turn on itself and kill the cancer! Keep faith, ask lots of questions, ring your McMillan nurse and get your answers. It’s much easier to try and cope if you understand what’s happening. Xxxxx

Hi was yours er positive or negative, I am her2 positive xx

Hi I have had one surgery, a theraputic mammoplasty with reduction on other side, the surgery successfully removed my breast cancer, lymph nodes clear same size as yours, but they could not get clear margins on an area of dcis. So after chemo, but while I am on herceptin treatment I am having a masectomy with immediate reconstruction. xx

Same diagnosis..grade 2/3. MRI and first oncologist appointment on Tuesday. Feels like 'no man's land' at the moment. Desperate to get on with it but also bl**dy terrified. 

I'd be really interested to learn how it all goes for you too.

Big love......there is a little comfort in knowing your not the only one x

Hi Charlie, sorry to hear about your diagnosis, we are all here to support you each step of your journey. What other information have they told you. Are you er positive or her2 negative or her2 positive. Have you been given a treatment plan. There is so much to understand and digest following that discussion but we are all here. Best wishes xxx

Charlie sorry you found yourself here! The ladies here are so helpful and supportive  you won't feel alone in this.

I wanted to wish you best of luck for onco apptmt Tuesday....let us know how you got on?

You should be given a pathology report from your biopsy from onco doctor?

Take care of yourself x

C

Hope your appointment goes ok Charlie. It is so scary but it’s true we can all help on here with any questions etc as you start your treatment plan. Hopefully you will get more answers today and will start to feel more reassured once you know the plan in place xx

Hi it is what it is, how is your treatment going. Have you finished your herceptin,  I have just had my 2nd cycle of ec, 3rd one in a couple of weeks. Lost most of my hair after 2nd one. Have you noticed yours growing back xxx