Hi just wondering if anyone else on here has been diagnosed with being HER2 positive and how has treatment been or gone for you ? I’m slightly nervous that I have just been told that I am one of the few that are this . I have been diagnosed with grade 2 breast cancer with some lymph node involvement .
Hi yes it is good to talk and share experiences. Oncologist appointment tomorrow, wishing everyone good luck with there treatment xxx
Thank you , although bit pissed off at moment as they have messed up my cold cap treatment so anxiety is through the roof. Xx
Hi. Sorry you've had this diagnosis but you're in the right place for support. I was diagnosed HER positive in February and have gone through chemo, surgery and radiotherapy. I've blogged, because it really helped me to write it all down, but it might help you. Best of luck
https://community.macmillan.org.uk/cancer-blogs/b/one-life-live-it
Belstar Hi
Please do feel free to jump in. Need all the help I can to lift the brain fog!
I am same Her2+, Stage 3 and petrified.
I need to keep thinking do-able as I feel the frame of mind has to be in good strong shape going into battle during chemo!
So grateful you have shared your experience and have now come out the other side. You are an inspiration. Some of my family members don't even seem overly concerned how big this is for me. I don't think those who aren't in similar shoes will ever fully understand!
How did you manage chemo? Any advice? The waiting it agonising as I really wish to start now for fear of spread. I try not to let unhelpful thoughts overpower me. Really scared also about chemo as I don't know what to expect. Trying now to get myself in best shape possible to face everything ahead.
You take care...thank you for being so supportive
C x
Belstar was just checking my boob and you're right it's starting to go hard on my right!! I am so scared, time is ticking! I will want chemo sooner rather than later but still have scans Tues and port. Sigh ...need to cope past this week...totally petrified...is it being hard coz of calcification? Help!
C x
Morning Claud - mine went hard because the cancer was blocking the lymphatic system. The worst bit is waiting for treatment to start. It's awful. Once it's under way, you will feel more positive. I lived and breathed chemo when I was on it. I joined a FB group and I still visit it every day. I made friends from all over the world on there. Before I started chemo, I bought loads of stuff -- soft toothbrush, alcohol free mouth wash, Imodium, Cosmocol, body lotion etc - only to be presented with a free goodie bag containing all of it from my breast nurse on my first day of treatment. Maybe worth checking if you will get one of these. Also contained lip balm and all sorts. My chemo side effects were sore mouth (first round only), tingling, gastro pains (just for 2 days each round - can get something for that), dry skin, constipation, followed by the opposite and hair loss. No nausea. I got used to it and you will too. It was not as bad as I expected at all. I will be thinking of you. xxx
How have they messed up with the cold cap?
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