4 am and head is running away with me...........

Hello I’m sorry to hear about your diagnosis and the other illnesses you have right now but glad you have joined the group as you will find there are lots of people on here struggling with diagnosis also, me included, and lots of support and advice.

Initially I spoke to the Macmillan nurses a few times  and they were very helpful and reassuring and they may be able to help with some of your queries but also I’d speak to your doctor again and mention to him/her how you are feeling right now and hope they can put your mind at rest.and if ossible get a face to face appointment so your foot at least can be checked properly.  I have easily managed to get face to face appointments recently.  

I am impatiently waiting for surgery and my mind is working overtime also, especially at 4 am this morning when everything always seems worse.  Very best wishes x

I’m honestly scared to raise it with them but know I need to face it.... I’ll give the nurse a phone just now.  I’ve got a face to face with the doctor next Thursday so hopefully we’ll agree a plan then.

I’m sorry you’re going through this too and hope that you get what you need soon. The delay just now is horrific for everyone and sobbing your heart out behind a mask is not easy. Big hugs x x

HI Foody50, sorry you have found yourself here but here is the right place to be, we have all been there and understand your fear, hopefully you wont have to wait long to get your results back so you have a treatment plan and something to concentrate on, one day at a time, you are not alone, Love Ann

Hello Foody50

Welcome to the club that we would all rather not have needed to join.

I think Wobbly1 is right, you should be having another conversation with your GP, and laying out all of these symptoms you are describing. You could make a note of your whole story to keep you on track, and make sure that you do say what you want to convey. I find if I am feeling stressed and emotional, that it is easy to ramble and miss out things that I actually wanted to say.

I am just back from a GP face to face, so they are doing them again. In the beginning of the pandemic I had to insist to the receptionist. The stock answer was, she would have to ask the doctor. Face-to-face was never actually refused if I said that I believed that I had something that I thought needed to be seen by the Doctor.

If you were told that you have BC at the mammogram /ultrasound, then your situation has changed re the pain in your foot, chest and reflux type pain. Be insistent that you need to see the doctor and be examined.

You are at the most difficult stage of having your alarm raised, but not knowing anything for sure and it is no wonder your mind is doing overtime. We would all be the same.

Ideally you want you to ask that all bases are covered by any scans they send you for and that whatever is thought to be necessary to answer ALL your questions and concerns are carried out without delay.

Sending you big hugs.

Let us know how you get on.

WallyDug

I know you’re right and thanks for answering/welcome.....I’m a control freak so finding it very difficult to have so much unanswered and running through all the scenarios is not healthy! Sending big hugs Lorna x

Thanks very much Ann. I’m going to find that so difficult but I will try!!! Big hugs Lorna x

Welcome (from another Lorna!) the waiting game is not a nice game to play but we sometimes have no choice. I have a very overactive mind, like you early hours or trying to drop off to sleep. its very hard to switch it off and i've found I just have to distract myself - books, tv, chatting to others. please don't google but use Macmillan or Breast Cancer Now site. I won't tell you not to worry as everyone is different but hoping that time passes quickly for you. I would as others have suggested, talk to GP - its not just the symptoms that need sorting but the emotional and mental turmoil needs to be helped too. good luck let us know how you get on xx

Thanks so much for responding.  I get the feeling I’ll be asking for tv/film recommendations next   

i really like the list idea - I did say I’m a control freak - so that whatever is worrying me I can jot down and laugh at later.  

Big hugs Lorna x

Hindsight can be a pain in the arse but reactions and emotions are very normal at the time. I think back to how stressed and anxious I was at the beginning and its got better but you never forget how you were. Yes good idea to write things down. Questions, worries, things going round head - it can just be for you, then its out your head. you can revisit or not. there is no right and wrong way as we are all different. I recall one breast nurse telling me that knowledge is power - and she was right, if you have the info then it can be more logical/practical in your mind. At the beginning and even now (i have 3 radiotherapy sessions to go) its still a lot to process and sometimes its just a feat to get through the day xx

I definitely feel like I’m in limbo and the stress is probably making me feel unwell. Fingers crossed anyway....

I’m sorry to hear you’re not through your treatment yet and hope that the coming days are filled with positive energy x x