Diagnosed today, mastectomy soon

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A month ago I went to my GP to request a breast exam. Today, a hospital consultant confirmed that I have invasive breast cancer. 

What I've been told today is that it's grade 2 breast cancer - lobular, of the right breast. ER PR pos HER2 neg. There's a 30% chance it's spread to the lymph nodes (scans looked clear but inflamed, but to the touch the nodes feel suspicious, he says), the surgeon will do a sentinel biopsy. Full mastectomy of right breast is booked for 4 weeks time and "abdominoplasty" (trying to read his handwriting, I might have got the word wrong) but he explained it was about pulling skin up from under the bust because he wants to remove all the skin round the tumours that are at the top of the breast, and the tumours have also retracted the breast upwards - in order that what's left after surgery doesn't pull tight. Then I'll have radiation. And I'll see what the biopsy says as to whether I'll also need chemo (I really hope not).

Oh - and I'll be on a hormone tablet every day for 10 years, he said.

I asked about the practicalities of a double mastectomy, given that I'm big busted (36H, UK bra size) and will be very, very asymmetrical in size and weight, but he advised not to. He said a reconstruction using tissue from my tummy or back might be possible one day. But as later he was concerned that there might not be enough skin for just the flat wound to not pull too tight, I can't imagine how that could ever be reconstructed to a breast shape at a later date. 

I forgot to ask when I was there, whether I can look at the scans - I would really like to see what it all looks like compared to the healthy breast. Maybe I'll have the opportunity to ask one day. I don't think I'll be seeing him again till my surgery. Has anyone else wanted to see their scans?

I'm alternating from numb to upset to terrified at the moment. 

  • Hi MoominAncestor

    Welcome to the forum and sorry to hear that you have been diagnosed with Breast Cancer. Breast Cancer is very treatable these days and there is a lot of support out there.  You can receive free counselling if you need it. 

    If you do end up needing Chemo it’s nothing to be frightened about. While I won’t say it’s easy it is doable. You get a lot of support from your oncology nurses if you need it.

    I was diagnosed with Triple negative Breast Cancer in September 2020 and had eight rounds of chemo. While chemo easy at times I did manage to get through it without too many side effects. They give you medication to help counteract any side effects you may have and if it doesn’t work they will reduce your chemo dose or change your anti-sickness meds.  You will be given a contact number for your oncology nurse before you start treatment so that you can ring them if things get bad.

    Wishing you all best with your treatments.

    Best wishes

    Daisy

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  • Thanks, daisy. I hope you're feeling as well as can be expected. 

  • I am thanks MoominAncestor.Pray

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  • FormerMember
    FormerMember

    I think, but not 100% sure, if  you are ER/PR positive, which you say you are, you're unlikely to have chemo as it's not so effective.  It sounds more likely you will have radiotherapy and the hormone-blocking tablets

    Obviously, you must wait until you're given your treatment plan but that's my understanding if ER/PR positive results

    I hope this might reassure you a bit, eh?  {{{Hugs}}} 

  • I'm ER and PR positive 8/8 and had chemo as was in one node. It added san extra 4% to my stats st 10 years.  I'm struggling to get on with letrozole and exemestane due to side effects, but persevering with gaps (I'd a retinal detachment at the start of lockdown 1 so stopped 6 weeks.  Started again and developed an ulcer in my other eye.)  Stopped and started exemestane (chest pains,  brain fog and high blood pressure, which became 193/92 with my second Zoledronic acid infusion.  I then caught covid (stopped for a bit,  then long covid with joint passion and tinnitus). I have a wobbly tooth from thr Zoledronic acid too!  What I'm saying is that I'm glad I did the chemo even though it was a bit rough,  as it's improved my chances slightly since I'm struggling with hormones blockers 

    I never saw all my scans,  though saw thr initial mammograms,  ultrasound,  nuclear bone scan and ther MRI on my liver where there was a small haemangioma. 

    “Remember to look up at the stars and not down at your feet.  Stephen Hawking,
  • FormerMember
    FormerMember

    Aww am.sorry  to hear of your diagnosis.  I was diagnosed with breast cancer in my right breast its in the tissue so I'm having a right mastectomy in June and a diep flap reconstruction from my tummy at the same.time . From my diagnoses in the end of March to June fornthe operation I cant fault the NHS and the cancer nurses they are amazing . It's very scary im foingnthis more or less alone my marriage has ended but living in the same house.  I have a.great circle of friends around me. But it's scary and very final . Xx 

  • Sorry you've had such a hard time of things, Londonmum. I don't understand all the terms you've written - it's like learning a new language, cancer speak. But you sound positive about the future which is brilliant. 

  • Thanks for your reply, Tupp. Good luck with your surgery next month. Keep us posted. I would love to know how your DIEP reconstruction goes and hope it brings you some body confidence at such a difficult time. Although I do have a partner, it's complicated and so I understand a little about feeling like you're going it alone. Be kind to yourself. I'll be thinking about you, as June is when I'll have my surgery too (minus reconstruction for now - fingers crossed they'll allow me to have the same in the future) 

  • Hi Tupp

    Welcome and sorry to hear that you’ve been diagnosed with Breast Cancer. Breast Cancer is very treatable these days so while it’s easy for me to say try not too worry too much. I found that doing the things that I love and the great support I’m getting from family and friends help me come to terms with my diagnosis.

    Wishing you the best of luck for your operation in June.

    Best wishes

    Daisy

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  • FormerMember
    FormerMember in reply to Daisy53

    Thanks daisy xx